Discussion Forums > Announcements
International Thalassaemia Conference registration
Andy Battaglia:
I tend to meet a real lot of people because everyone introduces themselves to me and everyone who is there better do just that. :wink If you can't find my bald head, just listen for the noise, because me and AD are gonna be making a racket!
Eponine:
Hi NUR
I"M SOOOOO happy to hear you are coming! Did TIF agree to your sponsorship? Or you manged to get your NTA to sponsor you?
Eponine:
Hi all
I'm very upset reading how so many of you would love to come over to Singapore but cant. I so wish there was something I could to help financially. :sigh
Again, I have to apologise for the high costs for this conference. We have already tried to lower it as best as we could. The drop in USD affected us as well. No doubt it is rising again, but its a little too late. Losses have been made.
But then again, wasn't Dubai's registration higher than ours? :scratch
Zaini:
--- Quote from: Andy on August 02, 2008, 03:35:59 AM ---I tend to meet a real lot of people because everyone introduces themselves to me and everyone who is there better do just that. :wink If you can't find my bald head, just listen for the noise, because me and AD are gonna be making a racket!
--- End quote ---
Lucky you :sigh.
ZAINI.
Andy Battaglia:
Eponine,
There isn't much any of us can do about the changing world economy. Flights, hotels and expenses just keep rising along with the price for basic foods and we are powerless to make any effect on these things.
It appears that the only answer is to find better ways to raise funds for thalassemics and the organizations that sponsor these important conferences. One source of funding that remains poorly tapped is the Mideast countries that have enormous oil revenues. We talked about this with Dr Michael Sadelain at the Dubai conference as he was in the early stages of raising funds for a gene therapy cure for thalassemia. He was hoping to raise some money from the sheiks in Saudi Arabia and Kuwait. As far as I know, these efforts have been mostly futile. Even though thalassemia is a major health issue in these countries, little money from these very wealthy people is being directed towards research. A sheik feels fine about spending $300 million on a private jet, but try getting $3 million for research. It's a shame and it is no longer just the West with the misplaced priorities.
We need to find ways to tap into these great amounts of wealth and get some directed towards our very important goals. Any and all ideas are welcome.
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