Discussion Forums > Working Towards a Cure

Potential cures

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Sharmin:
This article is not longer present on the web.  hmmm.  I hope everything is okay.  I hope that they have started the third patient on the trial. 

Sharmin

Parin:
Its realy a good news..well Andy what would be the time line to get it by all the patients......I am hoping everything will be all right.....mine as well as all the Thal patiends wishes with them....

Thanks
Ashutosh on the Behalf of my son PARIN

Narendra:

--- Quote from: sharmin on September 08, 2008, 03:47:49 AM ---This article is not longer present on the web.  hmmm.  I hope everything is okay.  I hope that they have started the third patient on the trial. 

Sharmin

--- End quote ---

Sharmin,

If you are referring to cooleys anemia site, that has been down for a while for maintainance.

Sharmin:
Has anyone heard any updates on any of this research?

Hemaquest?

Errant gene? (Thalagen)

Genetix Pharmaceuticals?  (Lentoglobin)

Has Hemaquest begun any trials with thal patients yet?

Hopefully Errant gene will begin their trials soon....


There is so much on the horizon, I hope good results start coming out soon! 

Andy Battaglia:
As far as Errant Gene, this was Pat G's latest myspace.com blog update. If you are on myspace, add Pat Girondi to your friends list and subscribe to his blog for regular updates.


--- Quote ---19 years ago, Michael Sadelain began his voyage that, if successful, will change the world.

There are many people working tirelessly on board his ship: Jason, Hsuan, Norb, Chris, Isabelle, Mike, Angela.... There are investors and benefactors, Jay, Joe, Teddyjimbob, Brendan, Bill, Ron, Angela, Mark, Kosti, George…

There have been the journalists in Europe and the US who have believed.

Most of all, there are the patients and families of the patients whose prayers, sacrifice and confidence have been transformed into positive energy and will to continue.

Thanks to all of them, we are beginning to write the IND. We hope to complete it by Christmas. After 60 days of submission, we should be able to begin Clinical Trials.

We will make the vector, after we have FDA clearance. It will then take a few more months longer but we're almost home

There are no guarantees that we will safely dock but we're ever so close.

Keep the prayers and warm wishes coming. We need them more than ever.

We had nearly 1,000 paid downloads last month. Your kindness and bad taste in music leaves me without words.

Every bit of favorable wind helps.. You have all made me the luckiest (and one of the best looking) men alive.

Thanks again.

Pat Girondi
--- End quote ---

In addition, he made this announcement.

--- Quote ---250,000 dollars donated to Orphan Disease Research from Ron Capano and Cooley's Anemia International.

For roughly 15 years I have been battling Thalassemia and Sickle Cell Anemia side by side with the Capano family of New York.

Thanks in a large part to them and the whole Cooley's Anemia International, we received a check in the amount of 250,000 dollars at the Ristorante Zuppa in Yonkers NY on September 23rd, 2008.

Thank you for your support.

-Pat g

Pat Girondi
--- End quote ---


I was hoping that Dr Sadelain would be one of the speakers at Singapore, but he is not on the schedule. When I met Dr Sadelain at Dubai, I was impressed by his confidence that they will find a cure for thalassemia with gene therapy. The main impediment is obtaining the adequate funding to get the trials moving and keep them going. This would be much easier if mankind could get their priorities straight, but a great awakening of intelligence will be needed for this to occur. When this happens, perhaps we will see a great shift in funding wars and bank bailouts to funding of projects that would actually be beneficial to mankind.


I'm waiting.  :boredom

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