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HbF Gene Variant Linked to Moderated symptoms of beta-thalassemia

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Sharmin:
Hi helpfulmommy,

When my son was little a lower iron formula was also available, there is an iron fortified formula and a regular formula with lower iron. 

the pale mouth may be an indicator that your daughter may need to be transfused soon.  I would have her hg checked soon - my son's hg at 2 months was fine - but at 3 months he was down to 4.4 which was probably not very good for him. 

Best of luck,

Sharmin

hopefulmommy:
Hi,

Yeah I also could not find a iron free formula, if I need to give her when I cant nurse or when we go out sometimes. The paediatrician also could not find one. You are right Sharmin, all we can find is lower amounts of Iron in some baby formula.

I guess its ok to give low end iron formula sometimes, as I am sure mothers milk also has some iron in it
We do give her iron free multivitamin, though.

The Hb result came yesterday evening, its still above 8, so the doctors have delayed transfusion. But I can see how it is going down slowly. Yeah, the blood drawing is so traumatic everytime, I can imagine, how a transfusion would go. Everytime the nurse cant find a vein, goofs up, and then we call the specialist nurses ,who come with special light to search the veins.They are pretty good.I decided that next time onwards I'll ask for the specialist at the start.

thanks and best wishes.

Andy Battaglia:
I believe that in the US, you can get iron free formula but by prescription only.

Shikha Mitra:
@Hopefullmommy...

Sorry  I read your mail late.. I am now here in the USA ( New Jersey) and I have mailed you my contact no to your gmail ID..
Please do call me if you need any further information about Thal E.. which is very common among the bengalees... it is not as severe as beta Thal.. but most E thals will need transfusions sooner or later... and if the Hb is not stable.. and keeps fallling.. then, the child will need transfusions...
But I would be glad to talk to you... do give me a call.. I am here till the 14th June..
All the very best
Shikha

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