Discussion Forums > Working Towards a Cure
hydroxurea......
maha:
Hi Micky
Great going. Looks like he is benifiting from hydrea. I felt it took some time for hydrea to show benefits atleast it took Ahmed around 3 months. So it just cannot be hydroxyurea, probably it is a combined effect of all other things you are giving him wheatgrass, resveratrol, IP-6 etc...By the way are you continuing with Rodex.
Take care
maha
kabir_love:
hi everyone.
maha yes we are still giving rodex as its just 3 drops after 4 days and since 1.5 year its been ok no side effect so im giving that still,
andy, well my son after a week from hydrea seem more energetic and now he has little extra plumpyness , littel chubby as what normal kids look ,
though he is vomiting now onces a day or some times not as might be because of hydrea.. as i read on internet but otherwise he is more happy then compared to before or like the 1st week when we did blood transfusion my son was like himself playing around otherwise before he just is in our hand and lazzy.
will do then next cbc in 1st week. again.
regs
micky
kabir_love:
hey.
hb count today- 7.0. TLC- SAME. PLATLETS - LITTLE DICREASE, but hb is fallen then last time giving hydera regularly, well now again ups and down, nothing is steady for long time for me. its been 1 month on hydera now.
well now like ahmed i hope that hydrea might show good effect in time.
hope for good
micky
kabir_love:
today hb count is 6.8. more down. doctor said we should consider 1 blood transfuion next week if it goes down. my wife want to go for bt now as kabir is geting thiner but he is active same as before. we are little confuse.
Zaini:
Hi Micky,
It's really a tough decision to make, but the the way i think is that hb of 6.8 is very low for a growing child,i know thal intermedias do live with hb that low,but who knows how they feel?
I can only wish you and your cute little son best of luck.
ZAINI.
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