Discussion Forums > Working Towards a Cure
hydroxurea......
Andy Battaglia:
For those interested in the effects of hydroxyurea on Hb over a longer period, please check the post at http://www.thalassemiapatientsandfriends.com/index.php?topic=1699.msg14097#msg14097
Olivia has been fairly stable for quite some time now. Give hydroxyurea a fair chance to work. It does show very positive effects on many patients, especially intermedias.
Manal:
Micky i am not quiet expierenced about blood transfusions with hyrea, but what maha and andy said answered your question. Wish you all the luck :hugfriend
manal
Zaini:
Is it NECESSARY to get your hb as low as 8 before starting hydrea? You can't just start it anyway? with transfusions?
ZAINI.
kabir_love:
12-5-8 hb report- 7.0 it was stable.. but unfortunately. my son on suday while playing fell of and he had some bleeding from his mouth i was really scared and thought that hb will surely go down and its not good then we next day wnet for BT. as they did the test before bt for hb. as a routine and after 4 hrs report comes and was 7.0. we was really confused what we did is good or not (BT). but as bt is under other thal. specialist and she is against hydrea now as we didnt told her before for hydera. now she told us to STOP hydrea as my son is 2 year only and we will start hydrea later.. now again what to do should be stop it or not.. confusee .
maha:
Hi Micky
Your post is very confusing. If your thal speciallist didn`t reccomend hydroxyurea then who did? Do not use these drugs unless advised by a doc who has good experience with thalassemia.
take care
Maha
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