Discussion Forums > Thalassemia Major
FerriScan : Non-invasive measurement of liver iron concentration
Sylvia:
Hi everyone,
I'm Sylvia and I work for Resonance Health, provider of FerriScan.
I understand from reading some of the threads that there are some of you out there with FerriScan enquiries. I'm here to help so if you need any information or assistance on FerriScan, please feel free to drop a note.
I also look forward to forming new friendships here in this forum. :)
Rgds
Sylvia Goh
Sylvia:
Hi Everyone....
Andy has put up a FerriScan Fact Sheet to provide more information on this MRI-based technology non-invasive measurement of liver iron concentration.
The Fact Sheet can be found on: http://www.thalassemiapatientsandfriends.com/index.php?topic=1677.0
Please feel free to contact me if you would like further information. For those in a Thal support group, we are more than happy to send you materials upon requests.
Thank you.
Sylvia
Zaini:
Hi,
Can you tell us about the charges? Although i think it's not available in Pakistan.
It's nice of you to be on this forum.
ZAINI.
Sylvia:
Hi Zaini
The cost of FerriScan varies from country to country and it is an additional cost to the standard MRI scanning fee.
Depending on individual country's health system ; some countries provide free MRI scanning faciliities, thus, patients would only pay for the FerriScan component. In some situations, it is also dependent on the reimbursement by the health system/insurer.
For example, here in Perth, WA, a local public hospital decides to fund FerriScan for all their patients. Thus, patients who go to this specific hospital get FerriScan free in their clinical care.
At the moment, our company is planning on reimbursement applications in some identified regions and by obtaining reimbursement, FerriScan service can be made available and affordable to a broader community.
You are right - FerriScan is not yet available in Pakistan. We are actively working on informing and creating more awareness on FerriScan. Do you belong to a local Thal support group in your community? Would you mind sharing your contacts with me?
What I would do is make contact with them and provide further information on FerriScan and explain how the service would assist in the chelation programs. And we will work closely with them should they want to take it forward to provide this service to its members.
Sylvia
§ãJ¡Ð ساجد:
Hi Sylvia,
:welcome
It's really great to finally see someone directly from Ferriscan.
Though I'm just a patient but I'm also an honorary staff member of Jamila Sultana Thalassemia Welfare Trust Islamabad, Pakisatan.
It would be great if some how you can cooperate with us for the benefit of Thalassemics.
Can you kindly tell us what can you do in this regard and what we can do to avail this facility so that I can have a word with my doctors and project manager.
Hoping to get a favorable response from you soon.
Regards.
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