Discussion Forums > Thalassemia Major

FerriScan : Non-invasive measurement of liver iron concentration

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§ãJ¡Ð ساجد:
Hi Sylvia,

Jamila Sultana Foundation is a Thalassemia Treatment center/welfare trust whose costs are covered by Global Pharmaceuticals. Although the owers are same but the J.S.F is managed by a different team. It would be better to contact the Project Manager of J.S.F for anything relating to Thalassemia because the management of Global Pharma. are different and their only concern is the production of medicine.

Today I had a word with our Project manager that FerriScan are interested to provide their services for Thalassemics in Pakistan. To my shock and amazement he replied "What's FerriScan?" I couldn't believe that they(including my doctor) don't even know about it. I can't believe that they haven't been informed by Thal. Society of Pak. or TIF or their own research on internet.

Anyway they were pretty interested when I told them a bird's eye view of the benefits of FerriScan versus Serum Feritin tests and biopsy. The only concern with them is the costs of the process and MRI.

It would be great if you send in some information literature and your offer to the Project Manager via Post on the following address:

Mr. Usman Asad.
Jamila Sultana Foundation.
D-24, 6th Road.
Satellite Town, Rawalpindi,
Pakistan.

Tel: +92-51-4842184

I will also send you an email for a faster correspondence including a cc to his email address (which he rarely checks :) ).

Sylvia:
Hi Everyone

I doing a research at the moment on Thalassaemia Treatment Center in UAE. I found on IronOverload - Middle East website (http://www.ironoverloadme.com/) that there are 6 Thal centers in UAE. At the moment, I can only find Al Wasl Hospital where the main Thalassemia Center resides.

Does anyone out there have information on the other 5 centers? Any information you can provide is very much appreciated. :)

Thank you.

Sylvia

Sylvia:
Hi Sajid

I have just send Mr Usman Asad an email Cc you with regards to our FerriScan proposal. Please feel free to comment and l look forward to hearing back from Mr Asad and yourself.

Thanks.

§ãJ¡Ð ساجد:
Thank You ma'am,

I have received your email and have sent a text message to Mr. Usman's cell phone to check his email as soon as possible!

Thanks for your cooperation and quick response.

Sylvia:
Hi Sajid

Always a pleasure to help. I hope that all of you in Pakistan would get to enjoy what the other Thal patients get in other parts of the world. We all are the same and no one should be neglected due to their location.

I look forward to hearing from Mr Asad. Take care my friend and let me know if you need more info.

Have a good weekend! :)

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