Discussion Forums > Thalassemia Major

FerriScan : Non-invasive measurement of liver iron concentration

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Sylvia:
Thanks Andy. I modified my reply and insert the sample report attachment. :smileblue

sahil:

--- Quote from: sharmin on October 13, 2008, 03:32:14 PM --- Doctors here have mentioned that 500 - 600 is the level of ferritin, at which Exjade should be re-introduced/started rather than waiting for your iron levels to go to 1000.  At that point maybe you can start on a very low dose of Exjade.  You can check with your doctor. 
--- End quote ---

I started off with Exjade when my S.Ferritin was 337 ng/ml. After a month it was 279 ng/ml. Then I got the T2* done. I mailed all of my reports to one of the best hematologist in Mumbai, Dr.M B Agarwal. He asked me to repeat my S.Ferritin every month and the day it reaches 1000 ng/ml start with Asunra (Exjade) again with 20mg/kg.

I spoke to two more doctors in Delhi, Dr. V K Khanna and Dr. V P Chaudhary, both of them said the same thing, to start Asunra when the S.Ferritin is 1000 ng/ml. Infact Dr. Khanna told me Exjade is not to be taken if the S.Ferritin level is below 500 ng/ml.

Its been 40 days I'm off chelation. I would be repeating my S.Ferritin, lets see what the results are.


\peace/

sahil:
sgoh,

Thanks a lot for the example report!!


\peace/

Zaini:

--- Quote from: sahil on October 14, 2008, 05:49:03 AM ---
Its been 40 days I'm off chelation. I would be repeating my S.Ferritin, lets see what the results are.


--- End quote ---

How blissful it must be to be off chelation,i wonder when i'd be able to do the same with my daughter.

Zaini.

sahil:

--- Quote from: ZAINI on October 14, 2008, 11:03:44 AM ---How blissful it must be to be off chelation,i wonder when i'd be able to do the same with my daughter.

Zaini.

--- End quote ---



Don't worry Zaini, your daughters S.Ferritin will get normal soon. You just have to be regular with the chelation. No other way that you can get it down.

Wishing you Luck!! Take Care!!


\peace/

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