Discussion Forums > Thalassemia Major
FerriScan : Non-invasive measurement of liver iron concentration
Stanza:
Hey Danielle,
I was finally able to contact the person at Boston Childrens Hosptial who sets up appointments for the Ferriscan. Her name is Jennifer Braunstein. She is wonderful!!! Helped me to get all the approvals I needed to get the appointment and health insurance approvals. I will be going up there on Feb. 4th. I will let you know how it goes for me.
Joan
Andy Battaglia:
Weill Medical College of Cornell University 416 East 55th Street New York New York +1 212 746 6801
Danielle:
Thank you, Joan. I'd love to hear how it goes! :)
Andy, they have it right here in New York at Cornell? That's awesome! I need to get it done soon. Thank you! :hugfriend
Sylvia:
Hello everyone, I apologise for the late replies. I was away on holidays and just got back to work today hearing good news from Joan getting a FerriScan appointment in Boston!
Danielle, the center at Cornell was previously setup for a clinical trial. After the trial, they didn't want to continue with the service. A upside to this is, we are currently setting up FerriScan at State University New York (SUNY) and we are in the agreement stage (just pending them to return the signed agreement). You could try to get an appointment there when FerriScan is available.
Bostonian_04:
Joan,
We go to Boston Childrens Hosptial for my daughter's Thal care. Jen Braunstein is the R/N who is vey helpful and approachable. My daughter had the MRI last year at Boston Children's. They did anethesia....we were very scraed but everything went fine. the Drs and nurses at the MRI center is also very helpful. All the best to you.....
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