Discussion Forums > Thalassemia Major

Slow rate transfusion and warm antibody

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Sharmin:
Andy,

Thank god for you!
I talked to my son's doctor 2 weeks ago - and we did the transfusion at a very slow rate.  He was also hit with a big dose of prednisone.

Last time his hg after 2 weeks was 80.
Today, his hg after two weeks is 122.
His doctor asked us to come back in another 2 weeks. 

He is looking great - his lips are as red as cherries and he is very upbeat and he has been playing with a ball
for hours like a puppy.   
 
Thank you for your advise, we will continue to transfuse him at a very slow rate. 
What a scare he gave us 2 weeks ago! 

I hope your daughter is doing well Andy.  I am happy about her nursing internship - she must be so happy. 

Sharmin 

Andy Battaglia:
Sharmin,

This is wonderful news and I hope the high dose of prednisone can eliminate the problem. It has been stubborn but these antibody issues can correct with aggressive prednisone use. Let's hope the slower rate will lessen the reaction. It does seem like it would be less shock to the system this way.

My daughter is still feeling tired but with her workload anyone would be. Her physical is in May after school ends. She is now confirmed for the nursing internship for 8 weeks this summer. She will be working in the ICU at the local community hospital in Buffalo, and getting paid rather well. She's excited.

Manal:
Congratulations Sharmin, i am so happy for the good news :congrats

Andy, i wish your daughter all the luck in her summer internship :goodluck  and please keep us updated about her tests

manal

§ãJ¡Ð ساجد:
Good to hear that Sharmin :happyyes :stars

Andy,

Wishing your daughter, the best of luck for her career! :goodluck

Sharmin:
Hi everyone,
my son did great for about 3 weeks after his last transfusion.  This week his lips seem a little more pale and he is suddenly lethargic.  He has never fallen asleep during the day - but today he fell asleep as soon as he got home from school - and has been feeling unwell all day and he has an upset stomach.  Just when I think things are getting better  :dunno.

Andy, he was on a very high dose of prednisone this time - usually such a dose could get him through 5 weeks.  This time - if his hg is low - it has only gotten through 3 weeks - could this mean that the prednisone is not working as well to control the antibody?  I am quite anxious, if the prednisone can't control the antibody then what will happen  :dunno :dunno :dunno

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