Discussion Forums > Thalassemia Major

Slow rate transfusion and warm antibody

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Andy Battaglia:
Sharmin,

Can you also ask Dr Vichinsky if L-carnitine would be of any help in prolonging the life of red blood cells when there is an antibody reaction responsible for their early demise?

Sharmin:
I'll start making a list - these are all great questions. 
- Vit C containing foods
- L-Carnitine.

I have until the end of June before I leave for our trip if you think of more questions. 

Zaini:
What about resveratrol? Is he taking it? are you giving him wheat grass?

I'll pray everything will be back to normal,well,as normal as it can be for our kids ,so many hugs and kisses for maani  :hugfriend :hugfriend :hugfriend

ZAINI.

Sharmin:
Thank you Zaini,
your wishes make a big difference.  The doctors are confident that this will get better, they are trying to determine the best way to do so.  Our doctor reassured me that things are not out of control and my son is not in any danger at this time - which makes me feel better.  We will do small weekly transfusions until things are better. 

Andy,  during our visit they will be doing the phenotype testing on my son as well.  I started him on wheat grass today - should I begin the resveratrol as well? 

Thanks everyone, love you all  :grouphug

Sharmin

§ãJ¡Ð ساجد:
Hi Sharmin,

I'm glad that it's going better this way. This shows that we have to go beyond the books. Though I can feel the pain of your son going through weekly transfusions is in itself a great deal too. I know I felt like pulped out fruit when I knew that I will be getting bi monthly transfusions instead of monthly. I felt like my life got tied more tightly to the hospital from that day.

I hope your son's routine gets back to normal soon. Praying for his health :pray

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