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Update on the Cairo Conference

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Manal:
Andy, actually i don't know what to say, but all you said is true and the reality is more harsh than you can imagine. There are many examples that if you can see will let tears come in your eyes but i think that if there is something right to happen it should start from here, from the people's will to receive what is good for them . I know that it is difficult in a community that lacks education, money and resources and above all ignorance but it may be here comes the role of the other part of the population who are being educated, to do their role in trying to educate and increase awarness.

You know why Andy i really don't want to transfuse my son, because i am so scared from blood here and supposedly i am from an upper middle class who have excellent acess to all medical care. Blood is supposed to be screened and it is, but in spite of this you can find a little young girl of 11 years old who got Virus C from blood in one of the very good hospital and when is this? It is in the year 2008 where you have Virus C tests. Some hospitals just buy blood from people, you know those people have certain well known cafe that they sit on and their only work is to donate blood, you know how often??????? Everyday, imagine what is the quality of donated blood, and how fast they themselves will die????  We had a well known case of corruption where the blood bags had bacteria in them and so they contaminated the donated blood. Though this case was closed and guy was not condemed but i don't have any trust in this brand any more. there are many examples as i told, so there are many thing that burden your heart in addition to the disease it self and this is the case with me the educated one so what about the others????????????????? and what about the patients who dream of complying to the tratment but just can not afford it ????? 

I don't intend to show the dark side as of course there are still good blood and still there are some ways to make sure that you receive a good one and good doctors and merciful hearts but my point is that when your soul is cheap to your rulers so it is not strange to be that cheap for the first world countries

It is a big and complicated

It is not your goverment only that contributes to this but ours too plays the same role. Corruption is dragging the countries to the extent that your basic right is a luxury. Anyway it is a long story that won't end and you can not tell from where it had started

By the way Andy, don't be so optimistic with the new president as i believe that this is a planned policy that is going to take place regardless of who is the president. May God help us all.



Sharmin, you are welcomed my friend

manal

Andy Battaglia:
Manal,

The stark reality hit me strongly on my trips to India. The amount of people living in poverty is staggering. Every time I saw people living in shacks by the river, I had the same thought. "How many thals are born to families like this, who can't be assured of a meal let alone medical care?" In many places, thal children are left to die. No care is given and the parents just give up on that child because there is no choice. It's heart-breaking to think of this. In our group, we are exposed to those who have at least enough resources to be able to read and get online. We don't see the vast amount of patients who get little or no help. Think about this. 30% of Thais carry a thal gene. In fact, there are over 100 known beta thal mutations in Thailand. Alpha thalassemia is also very common. There must be a huge thal problem there, yet how many members do we have from Thailand? I believe that the majority of thal majors born in this world, do not live more than a few years. The scope of these blood disorders is slowly becoming known and it's frightening. The task of creating screening programs on an international level seems immense but what happens if this isn't accomplished? Once again funding is a huge issue but without money, the joint efforts of WHO and TIF will make only a small dent in the problem.

I have no illusions about politics. Even if somehow we got a president who really wanted to change things, that person would be greatly hindered by the mess left behind by the current administration and the monstrous debt that many generations will be paying off. The system itself is so entrenched that real change may be impossible. Put this altogether with a corporate media that selects who are candidates will be, and there isn't much to get excited about. However, I do think we need a change and electing another guy who says let's keep doing what we're doing now is not the answer.

Kathy11:
Dear Manal .
Just your thought of us is good enough for me ,thank-you for all the informations,I would have never been able to retained and shared all these good info the way you have.You are a very clever young lady :clap :clap :clap :clap :clap :clap

If only the Earth wealth was shared equally, it could solve many problems.Unfortunately there are too much Greed and poor jugdements in most societies.
What a Shame, we don't have the power it needed to help those most in need of help.

Still, on a smaller scale, individually, we all can make a difference by doing what we can as minute as it might be.
Kathy

Manal:
thank you Kathy so much and you are most welcomed. Kathy, all of you are part of my family and i care about each one of you so much :hugfriend

manal

Zaini:
Well said everyone,

Andy you saw poverty in India,You are most welcome to Pakistan,i've personally met people who can not afford a single transfusion,and who think that their kids are definitely gonna die whatever they do,and Manal is right,nothing is gonna change who ever is elected.neither in Pakistan nor in US.

ZAINI.

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