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Did U Know That

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Narendra:
Members,

I see a wealth of knowledge from the members on this forum. I think sometimes it is good and sometimes it is difficult to understand it indepth. So, I was thinking may be a 1 liner (One Sentence) Info on something related to Thalassemia would teach us something new. As it is a 1 sentence, it would be easy to remember

An important point is to have reference to this Did U Know That, so that it is NOT what I think but what we have read and mostly confirmed!!

I go first:-

Did You Know That:-
Thalassemia patients can become parents

Reference:- http://www.annalsnyas.org/cgi/content/abstract/1054/1/300

--- Quote ---Over the last 15 years, 22 women with thalassemia major have completed 29 pregnancies at the Royal Hospital in London
--- End quote ---

Who goes next?

Andy Battaglia:
Great idea, Narendra.

Most thal majors are extremely deficient in Vitamin E. We all know about folic acid, but the same stresses that demand high amounts of folate also demand vitamin E supplementation.

http://www.atypon-link.com/WDG/doi/abs/10.1515/CCLM.2006.219?cookieSet=1&journalCode=cclm


--- Quote ---levels of plasma vitamins A, E and C were all shown to be drastically reduced as compared to the disease-free controls ...Taken together, our data indicate that excessive lipid peroxidation and a profound depletion of plasma vitamin A, E and C levels exist in patients with β-thalassemic major. These data suggest that antioxidant supplementation to the patients for the purpose of alleviating the oxidative stress may be warranted.
--- End quote ---

Vitamin E helps prevent the peroxidation of the walls of the red blood cells. This is very important because it affects the ability of cells to function...which is to carry oxygen throughout the body. Use only natural vitamin E with d-tocopherols. dl-tocopherols are synthetic and may be harmful is high doses. In addition, vitamin E should be taken as mixed tocopherols as this is how it exists in nature and is much more effective when the whole complex is taken. I have asked Sharmin to talk to Dr Vichinsky about vitamin C in thals because thals are usually very deficient in C also, but all the literature says to avoid C.

Manal:
Narendra, fantastic.......but i think that this shouldn't be a post because by time it will be hard to find. What about making it a section of the site under the name ''did you know...'' as you have mentioned , Any way

Did you know that it is now proven that L-carnitine reduce apoptosis and prolong the life of the red blood cell in thal major and intermedia patients

For explaination,check this link

http://www.thalassemiapatientsandfriends.com/index.php?topic=892.0;highlight=l-carnitine

manal

sydneygirl:
Good suggestion!
my contribuation is-Did you know that- when having blood (a transfusion) i was told by a nurse not to cross your legs as its not very good! i forgot why i think she said clots or something but i forgot,but just dont cross them.

Zaini:

--- Quote ---Use only natural vitamin E with d-tocopherols. dl-tocopherols are synthetic and may be harmful is high doses.
--- End quote ---

Hi Andy,

How would you know if vitamin E meds you are taking are synthetic or not? my doc prescribed me evion for two months.

from http://www.merck.com.pk/line_bus/vit&minerals/Evion_brief.htm


--- Quote ---Evion contains alpha locopherol acetate (Vitamin-E acetate) which has strong antioxidant properties.


--- End quote ---

This explains anything?

ZAINI.

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