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Did U Know That

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Sharmin:
I have a similar story, we know a family who has been dealing with hydrops fetalis.  They miscarried several times - after that they tested early in the pregnancy and began transfusing the baby before birth (in the mom's womb!).  The boy is now the same age as Little A, he is a very normal and happy boy - he and Little A often play Wii together at the hospital during transfusion. 

Zaini:

--- Quote from: sharmin on January 23, 2009, 12:52:36 AM ---I have a similar story, we know a family who has been dealing with hydrops fetalis.  They miscarried several times - after that they tested early in the pregnancy and began transfusing the baby before birth (in the mom's womb!).  The boy is now the same age as Little A, he is a very normal and happy boy - he and Little A often play Wii together at the hospital during transfusion. 




--- End quote ---

Wow! How can you transfuse a baby in the womb? By transfusing mom?

Zaini.

Sharmin:
Hi Zaini,

I was surprised as well, especially considering he was born 10 years ago.  I assume that they transfused him through the umbilical cord. 

Can you imagine, they went to such lengths to have a child knowing that he would be transfusion dependent once he was born.  His care now is the same as a beta thal major.  He looks and acts the same as Little A or any other thal major.  The parents feel that it is very worth it for them to have their beautiful son.  This gives a whole other perspective to what we are going through doesn't it - considering they chose to live the life we are living over not having a child. 

Sharmin

Zaini:
That's amazing  :sigh I am speech less.

Zaini.

Narendra:
From:- http://smj.sma.org.sg/3402/3402a1.pdf

Did U Know That:-
Thal receiving transfusions should use Leukocyte Filters as the filters help in preventing transfusion reactions like fevers.

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