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Did U Know That

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Andy Battaglia:
The oral version of Ferriprox is rather new and has shown to have far fewer side effects in the digestive system. This has almost elimintaed one reason why patients sometimes could not tolerate Ferriprox. Ferriprox (deferiprone) is the most effective chelator for removing iron from the heart and also offers some cardio protection. The new oral solution has really simplified chelation.

QA:
Tks Zanni, tks Andy, tks U all... But tks is never enough to say to Lisa... Why haven't I found you all any earlier?
My boy is thal beta/HbE. He receives tranfusion once in about three mths to maintain Hb around 9. He used to get 2 vials of Desferal subcutaneously wkly. However he's frighten of injection. he did not use any Desferal in the last two mths and the ferritin level reached 1500. We brought him to Singapore and a doctor there gave him Deferiprox 500mg, twice daily. He is really happy having that oral med. After 1 mth, the ferritin reduced to 800 and doctor tells us to continue that med with the same dose. I hope being in Singapore with experienced in thal doctor will help my son much more. And being with you here i will learn so much... Thank you :smiley
Poor us that not any doctor in our city  has much experience with thal. We received not any clear treatment plan for my boy, no advice on supplement of vitamin C or anything alse...

I've seen many thal children in the hospitals, they almost come from remote areas and are poor,they are not iron chelated cause of expensive iron chelator...  :(

Lena:
That is why this site is so helpful:

It gives people a chance to survive!

It breaks my heart to know there are thals who cannot "rule thal", as Andy puts it...

Lena.

QA:
Sorry Zaini, I did not write your name correctly. But it does mean you are a so good friend of mine now...

Zaini:
QA,

Its ok,you don't have to apologize for such small mistakes :) i hope your boy will be healthy and happy and his ferritin will go even more lower,i am glad you found a good doctor :)

Zaini.

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