Discussion Forums > Working Towards a Cure
The Carao Trial - How effective is it & who benefits most etc.
Lloyd Standish:
Manal,
I think we can decide that one 2-bottle package sent to you on 6/13 was lost in shipping. I will pay for reshipping of 2 bottles. I'm sorry you had this delay. I suggest you go ahead and start using the 2 bottles that arrived, since the reshipment should arrive before they are finished. 2 bottles should last 5 weeks for an adult.
aysam:
WHAT IS THIS YOU ALL ARE TALKING ABOUT ANY AFFECT DOSE IT WORK WERE CAN I GET SOME
Lloyd Standish:
This is about carao fruit for thalassemia. Carao fruit is a natural forest fruit that is proven effective for "ordinary" anemia as well as sickle cell disease, but there is little information on use for thalassemia. There is a study involving 10 members of this forum for thalassemia. For more information, see this forum thread: http://www.thalassemiapatientsandfriends.com/index.php?topic=1259.0
Zaini:
Hi Everyone,
My daughter is going for tran sfusion tomorrow,we tested her hb to day and the reading is 9.9 after four weeks :biggrin since last few months her hb was hovering between 9.4 and 9.6 with 3 weeks intervals,last time her pre transfusion hb was 10.2 and her doctor allowed us to take a break of 4 weeks,and now 9.9 after 4 weeks,isn't it good? Does it mean carao is helping her? What do you guys think ?
Zaini.
Andy Battaglia:
Zaini,
That is good news. Carao may be having an effect so please continue to keep the records Lloyd requested and also comments about what you observe about her health in general. Hemoglobin levels can change a bit with the season, so we shouldn't jump to any conclusions yet but it is a positive trend.
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