Discussion Forums > Working Towards a Cure
The Carao Trial - How effective is it & who benefits most etc.
Lloyd Standish:
Hi Sharmin,
Thanks for the update.
Would your conclusion so far be that carao has given little or no improvement in your son's hemoglobin level?
You say he has good energy and looks and feels good. Do you think the carao has definitely contributed to that?
Regards,
Lloyd
Sharmin:
You are welcome Lloyd,
There are many factors that are affecting his hg right now - such as the antibodies, therefore I cannot give you a conclusive answer about whether or not carao is affecting his hg levels. I do however believe that from the time that I started using carao and bcomplex his energy levels and general mood have changed 110%.
After his ritixumab treatment this summer he was easily tired, irritable, quiet, easily out of breath and he did not look well. Since I began carao and bcomplex he is a completely different child - happy, energetic, not easily out of breath, and I can barely keep up with him.
These are my observations,
Sharmin
Zaini:
Lloyd,
What i think is carao may not effect hb levels in these kids,but it is helping in keeping them energetic.We are on the 8th bottle now and i'll have to find some one to order more bottles for us.
Zaini.
Sharmin:
1. Confirmation of delivery of the carao - October 23, 2008
2. Date when carao is begun - October 23, 2008
3. Dose given - 4 tsp with warm milk
4. Age and diagnosis of patient - 10 years and 6 months, thalassemia major
5. Average hb before carao was begun (the last several blood test results, if available) - pretransfusion hg 90 - 100
6. Results of all hb tests done during or soon after the period of use of carao.
Blood test results from Tuesday March 17th, 2009
3rd week since last tx - pre tx hemoglobin Wednesday 99
7. Whether or not any other treatments were started during the period that carao was given - began B complex (50mg) October/08, began nigella sativa and colostrum Wed, Feb 25th 2009.
8. Any extra observations, such as observations on energy level and effects on the overall health of the patient - Good energy, he looks and feels good. He has played a lot of hockey during these last few weeks.
We have almost finished 4th and final bottle of Carao. Lloyd thank you so much for giving us the opportunity to participate in this study and sending us the product.
Will update again after next blood test.
Sharmin
Lloyd Standish:
Sharmin wrote:
--- Quote ---There are many factors that are affecting his hg right now - such as the antibodies, therefore I cannot give you a conclusive answer about whether or not carao is affecting his hg levels. I do however believe that from the time that I started using carao and bcomplex his energy levels and general mood have changed 110%.
After his ritixumab treatment this summer he was easily tired, irritable, quiet, easily out of breath and he did not look well. Since I began carao and bcomplex he is a completely different child - happy, energetic, not easily out of breath, and I can barely keep up with him.
--- End quote ---
This sounds great, and I think carao is most responsible for most of this benefit. I hope this experience (along with many others) inspires medical attention, including a formal study.
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