Discussion Forums > Working Towards a Cure
The Carao Trial - How effective is it & who benefits most etc.
Andy Battaglia:
Monthly rather than bi-weekly is mostly a matter of convenience. I think that twice monthly makes more sense if it is possible. It guards against having any period when the Hb is lower than the minimum you want to see. I think the condition of the veins is a big factor so it may rely on how easy it is to find a vein twice a month.
Canadian_Family:
Hi Zaini,
I read your posts in this thread, seriously my blood boiled when I read the attitude of the doctors in Pakistan. I think they don't know enough or they do not update themselves accordingly. I think the latter is true. This is ridiculous behavior.
Zaini:
Thanks C.F,
That's the way it is,i hav an appointment with my daughter's hemo on 11th november, and i am sure we are not going to get anything informative out of her,it's like a foot ball game,when ever i ask ward doctor anything,he kicks me towards hemotologist ( ask dr zehra first),and when i ask anything to her hemo she says ( dr anwar i.e the ward doctor must know it well),and still she had the nerves to yell at me when i didn't visit her for 5 months once,i don't get it why she insists on visiting her when she doesnt give any updates or information,her per visit fee is rupees 1000 in which i can buy two weeks supply of desferal,why waste hard earned money?
And this time i am going to tell her that,once she utters the words "ask dr anwar" i am going to tell her to not ever ask us to visit her.My hubby works literally like a slave to give us a good life,this man is loosing precious years of his life,and for what,for her holiday trips to America?
I am sorry i got off track.
Zaini.
Kathy11:
Hi Zaini.
YOU never have to apologize for your truth.
it a safe way to vent your concern.
you have the right to get answers to your daughters'medical condition.
You and your husband are doing the best you can. :clap :clap
Take care with love from kathy
Ayesha:
Zaini: well its really sad to hear all that happening to you, me and Salman are patients of Dr. Usman, I think you should contact him? he doesn't force or yell at us for visiting him, we don't visit him for 6 months or sometimes a year, its okay with him... he never insisted us..
he also never tell us anything new :rotfl but he never ask you for unwanted visits, i guess all the hematologist know less than patients :P its okay naa :D
we have damn good knowledge and blessings like, net, thalpal, friends, andy, sharmin hehe what not? we will use them if hematologist did'nt tell, its ok na :)
i remember when Salman was on tablets Fosamax, its bit expensive, i asked my friends were for alternate, and I got to know about Reventa, its cheap and same formula, I asked Dr. Usman and he happily agreed to me ;d
cool n calm doctor!
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