Discussion Forums > Working Towards a Cure
The Carao Trial - How effective is it & who benefits most etc.
Sharmin:
Hi Zaini,
The more that I learn - the more I think that the benefits of products like carao may be difficult to measure in terms of hg levels or ferritin levels. I think that these products increase the efficiency of the red blood cells and their oxygen carrying capacity. I think that they have an antioxidant effect by binding free radicals (including free iron) in the body - and probably positively affect the cardiovascular system by increasing circulation. These affects in the long term protect patients from the affects of thalassemia.
I hope that most thal patients are on a variety of these type of supplements. Carao is a very good one - although it stinks :vomit. I am glad that the kids are drinking it up though :)
Sharmin
Manal:
I totally agree Sharmin, i have learned in Singapore that there are certain things when taken will not directly affect the HB but not taking them will cause serious damage. The first example of such things are antioxidants. I too believe that carao is doing something
manal
Manal:
Hello Lloyd
I have updated you with the January results in the link below
http://www.thalassemiapatientsandfriends.com/index.php?topic=1259.msg22365;highlight=carao#msg22365
--- Quote ---Dear Lloyd and everybody
I am extremely soooooooooo happy,i did a CBC today and for the first time since my son was diagnoised his Hb is 7.2 I know some of you may think this is too low but for me i never saw this reading before
Lloyd,
HB for January 7.2
MCV 53.4
bilirubin (total) 2
Retix count 6.4% ( i really don't understand this at all because when HB increase this count should decrease but with me it goes the opposite.....any explaination)
The only thing i am giving Ahmad beside the carao for the last 3 month was an extenssive course of supplements ( all what he was having deficiency in including zinc, vitamin A, gluthathione.... and others)
Lloyd
As for me, my HB increased from 10.9 to 11.3 and i feel good
Please feel free to ask any thing
manal
--- End quote ---
As for the February update:
1- My son finished till now 6 and half bottles ( by the way i ordered 7 more bottles through a relative in the states and i received them, so he still have 4 bottles left)
2- Started the carao in June 2008
3- First two bottles i gave 5ml twice a day then starting third bottle the dose is 10ml twice a day
4- my son 6 years and thal intermedia , never transfused
5- Average HB is 6.2 to 6.5 ( his normal without anything other than the supplements)
6- This month , February his Hb is 6.1
7- No treatment given except minerals and multivitamin, L-carnitine and folic acid
I will update you with the following CBC on March
As for my update on the carao:
You will be happy to know that my HB today is........ 12 in such a short time
manal
Sharmin:
Manal,
I am glad to hear that your hg has increased! I hope that Ahmad's hg will increase again too. I also know that the supplements are helping his hg be more efficient.
Sharmin
Sharmin:
1. Confirmation of delivery of the carao - October 23, 2008
2. Date when carao is begun - October 23, 2008
3. Dose given - 4 tsp with warm milk
4. Age and diagnosis of patient - 10 years and 6 months, thalassemia major
5. Average hb before carao was begun (the last several blood test results, if available) - pretransfusion hg 90 - 100
6. Results of all hb tests done during or soon after the period of use of carao.
Blood test results from Wednesday, February 25th, 2009
3 weeks since last tx - pre tx hemoglobin Wednesday 100
7. Whether or not any other treatments were started during the period that carao was given - began B complex (50mg) October/08, began nigella sativa and colostrum Wed, Feb 25th 2009.
8. Any extra observations, such as observations on energy level and effects on the overall health of the patient - Good energy, he looks and feels good. He has had a cold for the last few days - but his hg level is decent.
We are currently on the 4th and final bottle of Carao in the package.
Will update after next blood test.
Sharmin
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