Discussion Forums > Thalassemia Major
Pre-transfusion hb 9 or 10
pmeet:
--- Quote from: Andy on June 21, 2008, 07:32:15 PM ---10.5 is considered to be the ideal Hb level to maintain. Below this, bone marrow activity increases rapidly. Even at 9, the bone marrow is about 2-3 times more active than normal. This means more potential for bone expansion and also more bad red blood cells for the spleen and other organs to filter out. It also means more chance for growth of extramedullary hematopoiesis, which are commonly found in conditions of chronically low hemoglobin levels. So, if at all possible, keep the Hb up.
--- End quote ---
In Seattle Children Hospital , Doc told us they ll keep hematocrit from 25-30 ( translates to around 9-10 Hb).
Generally the day before transfusion the Hb level are always around 9. Its been tougher as my daughter weight is on borderline where she needs two bags or 1.
Lokkhi maa:
My 3 years old daughter take transfusion after every 5 weeks when hb level 9 or 8.8.
According to the above helpful informative discussion shall I transfuse her after 4 weeks ?
Last October her Ferritin was 1870.
Andy Battaglia:
Most thal specialists will tell you to never allow the Hb to drop below 9.5-10 if possible. It is needed to shut down the overactive bone marrow, which is responsible for many of the problems of thalassemia.
Lokkhi maa:
Thanks Andy..
We decided from next time our baby will take transfusion after every 4 weeks.
djema:
My daughter Aysel hemoglobin drops to 69, 74.
In Krasnoyarsk where we live we are in the hospital 5-7 days in the hospital , we have no conditions for blood transfusions and to be able to go home . just to be in the hospital 5-7 days and then blood transfusions of 300 ml at one time . first day order blood ,on the second day, pour 300 ml, the third day of the tests, the fourth day of the order a second time blood , the fifth day, pour 300 ml, the sixth day of the tests and can go home. the hemoglobin does not rise above 105-110 . :dunno
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