Discussion Forums > Thalassemia Major

Message from my son:

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Sharmin:
Hi, I'm 9 1/2 years old and I have thalassemia major.  I have an auto-antibody,but otherwise I am fine.  Because of this, I have to go in for transfusions more often, and I take pills and to keep my iron down and to keep my hemoglobin high.  I live a healthy and fun life.  I got the academic award for my school, and I am very athletic, so thalassemia obviously doesn't affect that kind of stuff.  I play ice hockey, and my coaches have never even guessed that I have it.  The only difference between me and my classmates is that I miss a bit more school overall and I have desferal for 10 hours a night(which doesn't affect anything thats going on in my life).   

Thanks for all the good advice you guys gave to our family to help me stay healthy.  I hope we can help you back, and I really hope there is a cure for thalassemia.

                    sincerely,
                 Sharmin's son :thumbsup

Sharmin:
Hi friends,

The above message is from my son.  He wanted to write something encouraging on the board for parents of young children - and to motivate thal patients.  He wants people to know that thalassemia doesn't have to get in the way of living a happy and successful life - he doesn't seem to mind having it at all. 

Cheers,
Sharmin

nice friend:
hi little star :
.. i m surpised that he understood it in early age ....  ......  :high5
... how r u ??... have nice tripp buddy .. try to enjoy as much u can ..  :clapcheerboy
i m waiting to hear once again when arrive to home .. keep post ur little n cute  :clapcheergirl
comments.n dont hesitate to share anything u want share with us ...... take care       :heehee
 :yahoo :yahoo :clap :veil :crackup :hey :yay
                                           bye

Andy Battaglia:
Have a great time at Disneyland!  :yay

I've heard a lot about you but I don't know something. Which is your favorite hockey team?

Zaini:
Hello there son  :hugfriend :hugfriend

Have a lot of fun in disneyland,and believe me with all efforts your mom is doing for you,you'll continue having fun all your life  :bighug :bighug

We all love you. :kiss :kiss

Aunt Zaini.

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