Discussion Forums > Thalassemia Major

Message from my son:

<< < (5/17) > >>

Sharmin:
Thank you so much for your warm messages - my son loves reading them!  He will write again soon. 

Wishing everyone all the best,

Sharmin

maryo0m:
Hi there , thats a great post  :clap

hope some day you turn out to be a famous hockey player

Andy Battaglia:
Hey little A,

Your mom showed me some pics of you in June and September and I have to say WOW! You are looking great! What a difference in just a few months time. And just in time for hockey season.  :biggrin

Sharmin:
Andy,

Little A read your message - I actually let him compare the two pictures as well - he had the same reaction.  The change in him is unbelievable, it looks as though they are pictures of two different boys. 

During the time that he had antibody he was on very frequent transfusions and steroids.  When I look at pictures from the spring I can see the coppery, grayish tone in his skin and the puffy face from prednisone.  After rituximab and the new combination chelation therapy - he is almost off of the prednisone.  Now his face is its normal shape and his skin is pinky - he looks like he did before this whole antibody situation. 

Also, thanks to the supplements you recommended - the B vitamins, minerals, vitamin e and carao - he has tons of energy and he is doing great at hockey and track and field.  Other parents have remarked that little A has such great speed and energy in hockey - they are wondering what we are feeding him:):)  His dad is beaming with pride after each game. 

Andy, thank you from the bottom of our hearts for giving us our son back  :ty :ty :ty :ty 

Sharmin

avasmom:
                                         :biggrin :biggrin

                    hi lil A, you are so encouraging to me as a new parent of a baby with thal major, i pray that my daughter is as upbeat and helpful to others as u are!!u made me feel like my daughter wont have issues in fitting in and living a normal life. and u just seem so bright, god bless u and im so glad that the antibodies are gone

Navigation

[0] Message Index

[#] Next page

[*] Previous page