Discussion Forums > Thalassemia Major

Message from my son:

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Sharmin:
Arohanui to you too Cherieann,

Thank you for your compliments Cherieann - we are just learning from grown up thals like you:)  
You all have just taught us that thals can do anything that they put their minds to - we gave it a try with Little A - and he is
doing exactly that and having fun doing it.  Thals need to fill their lives with what they love, just as you are doing.   Given a chance - given a hockey stick and a pair of skates any thal can put the puck in the net.  

As you have done for us, I am hoping to show other parents of thal children that their children can do anything.  When they ask what thals do and what they look like I want them to see Little A playing hockey - and when they ask how young thals feel about their lives I hope that Little As messages will reassure them.  

Honestly, if genotype testing had been done for little A prior to transfusions and had he not developed antibodies - thalassemia would not have been any burden for us.  My hope is that to encourage people to do the things that we have done right - sports, positive attitude etc. and also to take precautions that we did not know about that is what each of us needs to do for the younger thals.  Having dealt with the antibodies - my hope is to have the simple monthly transfusion/chelation routine of thalassemia back because it really wasn't that bad at all.  

Thanks again friends,

Sharmin

Sharmin:
Thanks Big A  :hi5boys

Manal:
Little A, I am really sooooooo proud of you, way to gooooooo my dear little friend :hugfriend

 :clap :clap :clap :clap :yahoo :yahoo :yahoo :yahoo :clap :clap :thumbsup :thumbsup :thumbsup :thumbsup :thumbsup :thumbsup

manal

Zaini:
Here,Here  :clapcheerboy :clapcheerboy

We have our very own star in the family  :wink Zainab is also preparing for the sports in her school,she is really excited  :biggrin and guess what,my little pumpkin will also be participating  :biggrin i am dying to see him on the race track  :biggrin he is only 3 and a half years old .I wish we'll see her on the first podium like last time. :pray

Zaini.

Sharmin:
Thank you Manal, 
It's always great to share good news with you - as you have helped me up so many times when things felt like rock bottom:):)  Please give Ahmad and Zeina a big hug for me:) 

Thanks Zaini,
Of course our Zainab is going to be number 1 on the podium again! And, ohhhhhh I so would love to see little pumpkin running too:):)  He is such a cutie  :kiss.  Please tell Zainab that auntie Sharmin is giving her a  :hi5boys  and a big  :bighug

My prayers are always with your little ones - for them to be healthy and successful, 

Sharmin

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