Discussion Forums > Thalassemia Major
Message from my son:
nice friend:
:urwelcome Zaini Sis .....
diskjockey:
sorry guys but i have nothing to say like you guys because i didnt enjoyed my life like you guys partly because of arthritis.i remember i use to watch my class fellows playing football and wonder one day i would play like them.but unfortunately the day didnt came but i am hopeful that that day would come
Sharmin:
I hope that you are able to enjoy your life and that you are pain free. Arthritis can be devastating I am sorry that you have had to suffer from it. I hope that you will be able to live the rest of your life participating rather than watching from the sidelines. There are so many ways that you can participate in life. Best of luck to you.
Sharmin
cherieann:
--- Quote from: diskjockey on December 31, 2008, 09:46:47 PM ---sorry guys but i have nothing to say like you guys because i didnt enjoyed my life like you guys partly because of arthritis.i remember i use to watch my class fellows playing football and wonder one day i would play like them.but unfortunately the day didnt came but i am hopeful that that day would come
--- End quote ---
We may not always say it but some of us had to deal with similiar issues as you.
I can understand what you are talking about only mine is both wrists and hands. Its not arthritis. The specialist says it may be cardiocampothy. It has limited me alot so I adjust so that it doesn't stop me from being me.
You will find your niche in life where you will have fond memories like us no matter what your body is doing.
Thats what I have found for me.
nice friend:
Hey Ahmed ,
why r u sad buddy , look at me , i didn't enjoy the age wat's called the golden age the age when a boy could b on his peak of everything , i was suffering in that age of 15-20 , i was suffering to various kind of complications of thalassemia here i m gonna mention that all sequence wise ,
1 ) osteoprosis pains
no local doctor could diagnose wat was on with me .... they kept giving me painkiller for 3 years , not contineusly but when-ever i visited any local doctor he prescriipted me painkiller ... one orthopedic who was not a thals ortho but he were realy wise for me .. he is a friend of one of my uncle he gave me fosamax which was the first treatment for osteoprosis in that time ...
2 ) Stomach disturbance and ulcer in intestine ,
bcoze of too much painkillers and for taking painkillers for a long time i catch this complication , it was the worst pain i ever got ,,, i cant express in words , it was the first and last pain that drive me crazy to say anything , i was unable to sleep and i didn't sleep contineusly 2 - 3 nights several time bcoze of i didn't sleep even i took sleeping pills at that time. ... it was the worst thing i ever being through ...
3 ) un-diagnosed diabetes ,
a local doctor told me to eat the traditional heavy food ( desi khorakan hahah .. chori tay ghee wali rotian , doodh jalibi etc...etc .... ) ... after taking all these things , i got the symptoms of diabetes ( till that time i dont knew abt the symptoms of diabates ) when i told wat i being through he prescripted me almost 20 times for BSL tests ( Blood Sugar Level) ... but even BSL Random and fasting both were normal in the test , but diabetes was damaging my senses and my self ,as i slowly loosing my memory , my eyes , my sense of hearing , understanding even sometime i were unale to recognize my close relatives,........ at least a dctor told my parents to take me to lahore to Dr.javaria manan ... to that day i m recovering day by day and now i m able to play footbal ( penalty kicks only :D ) with my cousin and cricket matches after matches to my cousins ...
in 3rd point i mentioned all wat happened to me soo no 4th point hehehhee,,,
Best regards
Take Care and stay happy dont loose the courage bcoze its the life ....
Umair
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