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Have a Great Trip, Sharmin!

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Kathy11:
Hi Sharmin
 :flowers :flowers :flowers :flowers :flowers :flowers :flowers :flowers :flowers :flowers

Its hard at times, hang in there. your baby will improve.Be extra patience, he will get better its harder for children than adult. they cant explain themself.
Take care because I care for you and your children.
Kathy

nice friend:
hi sharmin ..
its happens some time when u tired of to gooing to dr and feeling your self weak ... i also feel like that  ... when i tired of the sicknes i prefer to live alone  in my room and dont to talk to someone ...  the time when it happen my bros n sister feel's the change in my mood  ...  in hindi or urdu  called ( chir chara pan )  if i m right ... soo its not a big problem try to give the enviroment he wants to live in ... take some decisions and let him to take a little bit decisions too ... so that he feel the power in his self ... he need ur encourgment ... ur time  .. and give him a  little break ... when u want to take him to the dr .. also tell him that wat u r planning after visiting the dr .. ( like going to eat out something or going to play land or giving a little toy...) ( i was a bigg fan of little toys when i was in his age ) .....soo i hope he will fine soon ...
umair

Sharmin:
Thank you Kathy - you're a sweetie  :hugfriend

Thanks Umair - it helps to understand what may be going on from his perspective.  We'll try our best to empower him so that he feels a sense of control. 

Sharmin

Andy Battaglia:
Sharmin,

While you should remind him that some of his behavior is not appropriate, please keep in mind that these various medications can have side effects and he may not be in full control of his moods. Even dropping the prednisone dose can have some short term effects, as his body adjusts to the lower dose. The psychological effects of everything he's been through lately may also be partially responsible. Whereas he has felt fairly normal with his regular routines in the past, the trip to California to see a special doctor, the very harsh IVIG treatment, the ritux, the drop in prednisone dosage, and the various physical reactions can all play a part on how he is feeling, and not feeling as he normally has, can all be somewhat overwhelming for anyone. Patience from the parents and reminders to the child about his behavior are important. I would not threaten punishment or restriction in activities to get him to behave at this point, as with what he has been through, it's easy to see why he would be acting up. He may have some fears about his own future right now and reassurance that he will be fine and that his doctors are doing something over a short period so that he can be free of a long term problem, is in order. It must be very hard for a young boy to endure all of this, so intervene when necessary but keep your composure no matter how much he acts up. Seeing that his parents are confident about his future and understanding about his present, can help him achieve the confidence he needs right now.

One thing I think you should also consider right now is special stress on a very nutritious diet and make sure he is drinking plenty of water. A special treat here and there is fine, but try to stick with a diet that can restore his body from the effects of the various drugs.

Canadian_Family:
Hi Sharmin,

How is your son doing now, I think almost everybody here do understand your stress as they have experienced it themselves. I cannot add to what Andy has already said but important thing for you is to stay calm and remember, you know your child better than us. If you feel this is drug related problem then it shall subside with time but if it is a behavior problem than you may want to address it now. Please keep us posted.

Thanks

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