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Andy Battaglia:
SF,
At the top of the page are pictures of Lisa and along the side is Sajid's dove. We are always reminded of our dear friends so don't worry about bringing back memories. They are all around us.
I want you to understand that now you are in the US and you have access to excellent and complete care and you should take full advantage of it. I would suggest you register with the Cooley's Anemia Foundation and ask them about a referral to one of California's Comprehensive Care Centers. Unlike Sajid, you have access to a health care system that can turn your situation around and you should do exactly that.
Contact
Cooley's Anemia Foundation
330 Seventh Avenue, #900
New York, NY 10001
(800)522-7222
Fax: 212-279-5999
Patient Services Manager
Eileen Scott
eileen.s@cooleysanemia.org
SF:
I did finally join CAF late last year and have already gotten so many benefits from doing so. Thanks for showing me the light to how I can get a referral to go see Dr. Vichinsky and other hematologists at OCH, by-passing getting referral from my Hematologist at LPCH @ Stanford.
Canadian_Family:
Tears running from my eyes. We remember you Sajid. You were such an inspiration to all of us. May you rest in peace.
Zaini:
:sigh May Allah bless you Sajid.
Andy Battaglia:
I would encourage all members to ask questions in posts, rather than emailing me. Most often, you will receive more replies if you post your question. I just discovered two emails in my spam. Both of these could have been missed entirely. Please do not email your questions. Post them. That is why this group exists.
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