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Does anyone have a portacath?
cherieann:
Hi everyone
Just wanted to know if anyone has a portacath that they use for chelation.
We have noticed over the years that having the desferal going through it irritates the area but also it gets infected more.
Now to ease the port I go subcut except when due for a transfusion. That's when my port is accessed and the desferal goes that way for the week.
baal:
hi cherie
yes, i have a port.
its my second. the first they explant after 3 or 4 years,
because of an infect....
this one i have since 4 or 5 years.
and i try to make only chelation with it...
no transfusions or anything else....
and its helpfully....
i came down from over 13.000 ferritin to last week
3.855
i think its the best way to fight such a strong battle like
mine (i mean the high ferritin-level)
my doc and me think now about continu with exjade...
but i didnt explane my port if its possible.
panos
cherieann:
This is my third port. My first one kept gettin infected and was two months away from being 10 years old. My second port was only a month old and this one is about 7 to 8 years old.
My port is used for transfusions as my veins are no good. But I love having my port it makes it so much easier.
My ferritins aren't great they are in the 4,000 but I keep trying. At the moment my daily dose is 4gram a day. One day hopefully I can get low results like you :biggrin
I can't get exjade at the moment as the govt would subsidise it so I keep going with my port and subcuts.
Does your port cause you grief with the desferal?
AstonDialo:
Here's a link to the old MSN Groups - Port Vs Needles
http://groups.msn.com/ThalassemiaPatientsandFriends/general.msnw?action=get_message&mview=0&ID_Message=1515&LastModified=4675487081142849608
this was posted almost 4 years ago.
Nothing has changed, but I'm up to Port # 5.
Left Leg this time, around the groin area
Just call me ET
EXTRA TESTICAL
nice friend:
can anybuddy tell me wat is this ....?.
is this a sort of needle ...?
or something like a cut in skin to infuse desferal ??..
does it make any difficulty in taking bath ?....
n how does it get infected ?....
nothing more to ask
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