Discussion Forums > General Chatter
Does anyone have a portacath?
cherieann:
My veins are only used for monthly blood tests. Too much scarring.
I'm pretty lucky with infections because with me handling it, theres less chance of cross contamination. The nurses say that I can't cross contaminate myself with my own skin cells.
How often do you get transfusions?
You say that sometimes you only get 1 bag?
If I'm lucky it's two bags but mostly it's 3 bags and thats 6 weekly unless I've been sick then I get transfused earlier.
AstonDialo:
I get transfused every fortnight.
I know it's more of a hassle, but beats spending a hole day in hospital on your day off.
My veins used to be really bad, I used to use my port for blood tests and for transfusions.
I used to go in every month, having 3 or 4 packs (most of the time was 4 packs)
But it's not good for the heart either to have such a large volume of fluid in 1 hit.
Not that I have any heart problems, (Knock on wood)
My best run is having a hatrick - 1pack on 3 different admissions = total of 3 packs in 6 weeks (1 pack everytime Ive been in)
I normally have 1 or 2 packs each time I have trans - Average 2-4 packs a month
My trigger Hb is 105.
> 105 = 1 pack
< 105 = 2 packs
< 95 = 3 packs
cherieann:
My agreement with the specialist is <99 is three packs
>100 is two packs
I try to last 6 weeks as the less transfusion the more chance I have of knocking some of my ferritin down.
You are right about the fluid and heart but with my sotalol, my heart has been pretty good letely (knock on wood) so I'm happier to go 6 weekly when I can.
I tell my nurses that I love them but if I can stay away I will. :biggrin
AstonDialo:
--- Quote from: cherieann on July 20, 2008, 09:53:38 AM ---
I tell my nurses that I love them but if I can stay away I will. :biggrin
--- End quote ---
:rotfl Ha Ha Ha
cherieann:
I knew you would appreciate that :biggrin
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