Discussion Forums > Thalassemia Major

what has been happning

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Andy Battaglia:
Post marketing observations have shown that swelling of the skin (angioedema) has occurred in some patients. In severe cases, Exjade must be stopped. Alia, your doctor should be made aware of this, so the selling can be monitored. Any sign of a severe reaction should lead to at least temporary cessation of the drug.

http://www.rxlist.com/cgi/generic/exjade_ad.htm


--- Quote ---Immune system disorders: hypersensitivity reactions (including anaphylaxis and angioedema(Angioedema is a swelling, similar to hives, but the swelling is beneath the skin rather than on the surface. The hives are called welts. It is also possible to have angioedema without hives.)).
--- End quote ---

http://www.exjade.com/hcp/about/administration/dosage-adjustments.jsp?disclaimer=Y


--- Quote ---If severe hypersensitivity reactions such as anaphylaxis and angioedema are observed, EXJADE should be discontinued and appropriate medical intervention introduced.
--- End quote ---

Alia:

--- Quote from: Andy on July 27, 2008, 03:17:26 PM ---Thank you all for your replay ,Andy her wieght is 13.5 and she will be three in 2 monthes.
i dont know whats happning with her,iam really worried about her puffeness. i am going to talk to the doctors about it, her ferriten went down when she started exjade but after that it only went down little bit,as exjade is new, i dont know if saras doctors will have alot of knowledge about it.
andy do u know if it make all the body swell or just the face?
thanks once again
alia

What is your daughter's body weight? The Exjade dosage is determined by body weight.

--- End quote ---

Alia:
hi all
i talk to saras doctor and she told me that the swelling is not that bad,she got adimia and its not that bad to stop the mdicine.sara is not angoadimia as she is too well for that , she would've had more swelling around evrywhare in the body. i was rlieve about that. my only worry is her fritten went even more up before was 2700 now after 1 transfusion it went up to 2900. the exjade is clearly not working.
alia

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