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a realy comprehansive article about thalassemia

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nice friend:
its a realy comprehansive article about thalassemia ...in this article Author: Hassan M Yaish, MD, Associate Professor Of Pediatrics, Director of Hematology Services  mentioned many  issues related to the thalassemia and he also wrote something about the drugs for thals like exjade and others ...
i think its realy usefull ...check it and tell is it or not ???..
check this article  :

http://www.emedicine.com/PED/topic2229.htm

Bigg:
I am still getting to know something new...
An hour ago I just found that thalassemia can cause you problems with hormones, and this article confirms it and says that you can have even more problems.
I have low growth hormone level and other problems with pituary, but I am still waiting for the diagnosis (before the diagnosis of thalassemia nobody would even consider taking care of this problem, because I am grown more than enough, so this seemed ridiculous that I can have low GH).
Hormonal problems cause me severe mucous membrane dryness (hormone problems are most likely to be the cause).

In the article, they write:

--- Quote ---The direct cause of growth retardation in these patients is thought to be an impaired growth hormone production ...
--- End quote ---

Ok, but what is the cause of this "impaired growth hormone production" ?
Can it be because of the stress exerted on the body? Similar thing happens to the children who are abused, but in their case the stress is psychological.

Or maybe GH production is stopped because of zinc deficiency, as described here:
http://www3.interscience.wiley.com/journal/112699354/abstract

I am thal minor so this:

--- Quote ---... or deficiency in production of somatomedin by the hemosiderotic liver. Involvement of the adrenal glands or the thyroid gland may also contribute to growth failure.
--- End quote ---
does not apply to me, because I do not have hemosiderotic liver.

Any ideas, comments appreciated.
Bigg

Bigg:
I forgot, it is confirmed that thal minors also have growth problems (probably problems with growth hormone):

http://www.ncbi.nlm.nih.gov/pubmed/15507851

Andy Battaglia:
I am often puzzled as to why not all thalassemia patients are told to take zinc supplements. In the early years of treatment, folic acid and zinc were the main recommendations for patients. I don't know why, but this information has not always been given to patients in more recent years. in fact, I have had patients tell me that their doctors have said folic acid won't do them any good. This shows a basic misunderstanding of the role folic acid plays in the health of the blood and circulatory system. It has always been known that thals are regularly deficient in zinc and should supplement but many thals are not aware of this. With this study you have found here, we can add minors into that category.

nice friend:

--- Quote from: Bigg on August 02, 2008, 02:40:25 PM ---I forgot, it is confirmed that thal minors also have growth problems (probably problems with growth hormone):

http://www.ncbi.nlm.nih.gov/pubmed/15507851

--- End quote ---

well i :agree to you bigg .. if we (thal maj ) look around us we will find minors ..we can recognize to see them that they r hal minors bcoze of their  short in height ,, fat but not healthy ,, yellow spots on face and body , and soft muscles and soft & fat belly .... u can easily recognize that he/she is a thal minor ....its neccessory to give them strong attention and to ask them to take treatments to prevent weaknes and being spoted in first sight  .. and grow properly as  a normal  person grows up..... yees andy i m agree to you too some doctor stops to take folic acid  i dont know y but its true ....... my doctor sugested zinc suplement for me a year ago and i m still on it....
@bigg
i m not a thal minor i  a thal maj  but i want to say something that is, my doctor treated me in this way ,
1st :  set the dose of insulin
2nd : told me to controle iron levels bcoze when iron stored in thyroid gland , the thyroid gland stop working   
        properly that effect's on growth very badly
3rd :  my doctor sugested Thyroxin pills for me bcoze of thyroid gland prob .
4th :  Zincat, Vitamin E 200 mg  along with thyroxin and d-calc
5th : stopped thyroxin after using 11 months

now my levels r good and almost normal .....

i want to mention some thing here that a Folic Acid 800mg is available in market by an american company ...
you can check for that : i have some links to share abt it here these are the links :

http://www.vitaminshoppe.com/store/en/browse/sku_detail.jsp?id=CF-1540&st=ps&source=YI&campaign=VitaminShoppe&gcid=C19283x009&keyword=CF-1540

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