Discussion Forums > Diet, Nutrition and Supplements

beet as medicine in thalassemia

<< < (4/5) > >>

nice friend:
Hi Sis ,
Thanx for your concerns , you're soo caring .. yeah , i m keep searching for the food veges or fruits those are good for thals , n i will keep sharing all that i will find ... i believe's in natural suplements like ftuit and veges , you mention abou t apples and pear , its a good addition in my list ...  Guava , Beetroot , Tea , Green Tea , Olive , Orange etc...etc....  soo , thanx for a super advice :ty ....
i m eagerly  waiting for your project , bcoze i know that would be a great informative project .... soo m waiting for that. ...

Take Care
Umair

Canadian_Family:
I love beets.

Now I do have one observation, which some may agree or disagree. I often hear about vegetables or fruits that may help in raising the hemoglobin in thalassemia major. Now please remember I am only talking about the hemoglobin inducer vegetables and fruits, the effects of vegetables and fruits, overall, in balancing the diet and other capabilities (such as helping the diabetes etc.) to help the overall health of thals is proven, and we are not discussing that effect. However, the vegetables and fruits as hg inducer, I am a little pessimistic.

I see thal major as a defect in a car engine that is missing two pistons, whereas it needs four pistons (if it is a four stroke car), no matter how much oil you put and ignite the self, the engine will not run to produce power, simply because it is missing the two pistons. My friends or relatives tell me a lot of "Home made remedies" to induce hg, which may have temporary effect (I don't know) or may have an effect in raising fetal hg to little extent, I remain pessimistic. I know two pistons are missing.

Not sure if I am on the right track in thinking or just a little pessimistic.

Manal:
Umair

I admire so much your presistance in being healthier and i am sure you are. you are an inspiration umair


Canadian family

--- Quote ---Not sure if I am on the right track in thinking or just a little pessimistic.
--- End quote ---

I can understand your point very well, it is like a damaged machine, whatever you do it will always give a bad quality product, neverthe less trying these natural remedies is not a bad idea as long as it is in the safe side. We talked a lot about the resveratrol and how it is proven to induce the fetal HB, the effect of the fermented papaya as a strong antioxidant, the carao, ... and there could be other things that we know nothing about yet so trying with limits is not really a bad idea

manal

Canadian_Family:

--- Quote from: Andy on August 02, 2008, 09:05:33 PM ---These are significant for thals but I won't say it increases Hb. Folic acid, calcium, potassium, vitamin A and antioxidant properties are all things beneficial to thals.

--- End quote ---

Oops, I got my answer from Andy's response. But coming back to my question, any response.

Sharmin:
Canadian Family,

I think that the effects of diet and supplements on hg itself may be very small and subtle for transfusing thal majors.  Their positive effects may be in helping transfused blood last longer and in helping with the oxygen carrying capacity (not sure  ???).  
Also, the positive effects can be helpful for people in using the hg they have more effectively - for example watermelon (& L-carnitine) and other nitric oxide inducers can help the body better adapt to changing hg levels by allowing the arteries to deal with the changes in blood volume.  

Another factor is that the effects of these things can be individual as well.  While the nutrients will benefit everyone - the effect on hg may be different for different people.  Even hg inducers like hydroxyurea have different levels of effectiveness in different people for unknown reasons.

I think that small and incremental benefits can have a lot of value for thal intermedias and maybe some benefits for thal majors as well.  After all the key difference between thal majors and some intermedias (in my understanding) is the ability to make fetal hg - therefore anything that would increase fetal hg should benefit thalassemia.  I don't know if the fact that the marrow is suppressed in thal majors prevents fetal hg production (which is why some doctors question the use of folic acid in thal majors).  

Andy, do you agree with this?

Sharmin

Navigation

[0] Message Index

[#] Next page

[*] Previous page