Discussion Forums > Thalassemia Major
Update and questions
Canadian_Family:
It is very satisfying news and we hope it continues to get better.
Zaini:
Thanks God he is doing fine,
Last few months were for sure a rollar coaster ride for you,what with all these treatments ,now just lay back and relax :hugfriend.
Zaini.
Andy Battaglia:
Hi Sharmin,
You should probably check with Vichinsky's office about resuming the supplements but I think that there would be no problem starting up again, especially IP6. The only one that they might be cautious about would be vitamin E because of its blood thinning properties but with the therapy over for now, this probably is no longer an issue.
Sharmin:
Thank you my dear friends - your support has kept me sane during the past few months. I am cautiously optimistic at this point - because some antibodies may be around for a while - but I hope they are diminishing to very low levels.
Canadian Family - how are your daughter's hg levels holding up? I am sure the drop was due to the procedure the hospital was using to store the blood. Please keep us posted. You would be surprised what a difference such things make. We were told that the reason for the harsh reaction our son had to the ivig was due to the particular brand of ivig they used. Apparently all kids reacted to that brand - and my little one was given 4 times the amount to prepare him for his treatment. YIKES! I pray that your daughter's hg holds up.
I love you all and pray for all of you:)
Sharmin
:grouphug :grouphug :grouphug :grouphug
Sharmin:
Thanks Andy,
I think I will begin IP6 soon. I should be in touch with Oakland next week for his Exjade follow up so I can discuss his other supplements then. I put him back on vitamin C last week.
During our first visit Dr. Vichinsky emphasized using zinc. I will ask them if it is okay for us to begin that now. I hope everyone else here is taking zinc. I think I mentioned that he was suggesting that all thals take centrum silver - or some equivalent.
Thanks again Andy,
Sharmin
Navigation
[0] Message Index
[#] Next page
[*] Previous page
Go to full version