Discussion Forums > Thalassemia Major
Update and questions
nice friend:
Hi Sharimn :
you can start IP6 as my doctor also permitied me to start this one ...
she told me that she will start exjade when my ferritin will become under 1000 and she said " your progress showing that it will happen soon " hahahaha i m also on Zinc ad Vit-e to a long on her advice ... i asked her about vit-c she told me that " it will b better if you can manage to take in natural form like an orange or lemon or GUAVA during chelation.... instead of tablets...
i m finding the space to send full story of my visit ..... i hope i will get soon ... i think the best place for my story , is in general chatters .....
ok tkae care
umair
Sharmin:
Hello again friends,
We had a quick hg check today - and thank god and all of you for your prayers - at 2 1/2 weeks post transfusion his hg is 109. We are still 'cautiously optimistic' that the rituximab is working and that the antibodies are finally going away. We plan to do a transfusion on Friday which will be a little over 3 weeks since his last tx. We still have him on 10mg of prednisone alternate days, our doctor is thinking to wean him down further if his hg keeps holding. If his tx frequency decreases then the combination chelation should bring down his iron levels soon :pray :pray :pray :pray.
Today is his first day back on the ice - he is very excited to begin hockey again. Thank you all for you love and all of the wonderful advise you give us. He knows you will all be proud to know that he is playing again after the rough summer he has had :) And thank god his attitude has improved he is much happier :grin
Umair, thanks again bro. I do want to start him on IP6, he had been taking it for over a year my only concern about supplements such as vitamin e and zinc is their possible interaction with the rituximab treatment he had this summer. I am very glad that you are taking these supplements, Dr. Vichinsky was very keen on thals taking them - he told us that these supplements play a large role in protecting your organs from iron induced damage.
Once again thank you all for your prayers I will keep you posted re his progress and his ferritin levels later this week,
love,
Sharmin
Kathy11:
hi Sharmin.
Its wonderfull news.
:hugfriend :hugfriend :hugfriend
I'm happy for your son and you, and for all the efforts that you put in caring for us all .
Good luck.
Kathy
nice friend:
Hi Sis :
its niice to hear that he is doing fine and anti-bodies going away ... i didn't help much in this thread but when i was searching for the rituximab.zinc key words i got to know that ( it explained on me ) wat anti-bodies r and how it look's like .... if i m not wrong rituximab is a chemo-therapy like treatment ... plz correct me to understand wat it is and...... shed a little light on it plz ... if it is possible..... and you can easily ..... and if u have some spear time as well ... otherwise please leave it unreplied ... :biggrin
take care
umair
Andy Battaglia:
Umair,
That is correct. My employee who has lymphoma has been through chemotherapy twice and part of the treatment was rituxan. It kills B cells which mature into lymphocytes that produce antibodies. The hope is that when new B cells grow, they will be normal again.
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