Discussion Forums > Thalassemia Major

Update and questions

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Canadian_Family:
Sharmin,

We hope your son gets well soon, you have come a long way and things have started to look better. We certainly hope the old antibodies will suppress with each coming day. Best of luck.

Sharmin:
 :ty :ty :ty :ty :ty :ty

Andy, Manal, Sajid and Canadian Family - your support means the world  :hugfriend

Sharmin

Sharmin:
Hi everyone,

It has now been 2 weeks post tx for my son.  At one week tx his hg was 127.  He looks well at this time, his color is quite pink.  I will probably test him next week to see if he needs a transfusion.  This is the longest he has gone without a transfusion in over 2 years (on such a low dose of prednisone).  I am hopeful that the antibodies are diminishing. 

He began school this week and hockey and his other activities begin in a few days.  He seems very energetic and enthusiastic, even at the end of the day.  I hope this means that the treatment this summer has worked!  My hope is that he will eventually be on a once a month tx schedule again very soon (even once every 3 weeks would be good).  I will update you with his hg and ferritin levels next week. 

Anyone else concerned about antibodies, I highly encourage you to speak with your medical caregivers about genotype matching, rituximab and IVIG.  I hope it continues to work well for my son and I hope that others who have antibodies will have their iron levels checked.  The iron accumulates very quickly!

Please feel free to ask me questions,

Sharmin

Sharmin:
Andy,

How soon would it be okay for me to begin giving him supplements such as IP6 again?  He has not had any supplements (other than vitamin C) all summer. 

Thanks,

Sharmin

§ãJ¡Ð ساجد:
That's a great news :yahoo

I'm so happy that he is going well without transfusions! :party

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