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Singapore Scientific Programme Schedule
Manal:
Hey Mariam , please calm down. i don't want you to rush to conclusions. First thing, what is the unit used in measuring the bilirubin. because there are two kind of units and the number could differe a lot
Second, please calm down i can see that what you have to work for is the iron over load, once it is down everything will be okay.
Third, liver biopsy is something that is not discuussed over the phone with doctors. Though the procedure is not that dangerous but at times it can be especially with unskilled doctors which is the case with the ones you are dealing with
Fourth, you didn't tell me if aysam is suffering from anyother thing other than thal and if there is any other genetic disorder running in the family
Fifth, i remember that Dr. Beshlawy told you in the conference that aysam suitable dosage from exjade should be in the 400 level according to his weight and she also advised you to use desferal via IV to reduce iron overload quickly
As for the terms i know nothing about them right now but i will search and let you know.
By the way Andy must be sleeping now cause it is so early because of time difference so we should wait a little bit.
Again i want you to calm down because as i told you ironoverload is the problem now and discussing types of chelators should be postponed now. The important thing right now is to give the correct dosage so that it could be effective
manal
aysam:
MANAL
NO I DONT KNOW OF ANY OTHER DISORDER HE HAS
but i can tell you that i know is that he has other problems like minor things sever osa obsractive sleep dis and to many infections and he was bleeding in his rectrum last month ? they said not to worry his blood showed bleeding in the results they did and also something really odd manal hsi white cells are always high never have they been normal from the day he was born his white cells always
aysam:
manal i posted everything on the site all his results ther are many others wich i also dont understand and all high some low like thyroid stim hormone 4.18* and many more come like are positive i am trying to send puja a fax but its not going tru so she said she can email dr mawal
aysam:
MANAL
HAVE YOU GOT DR BASHWAL EMAIL PHONE NUMBER ANYTHING IS IT POSSIBLE YOU CAN TALK DIRECTLY TO HER PLZ OR I ASK HER WHATEVER
Manal:
Yes i have but unfortunatly she is in Thailand now for a conference but i will send you her email
manal
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