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Singapore Scientific Programme Schedule
Kathy11:
To Sharmin,
I need to be free to express, myself freely and accordingly that is being true, open and honest with my friends,
I also believe that without spoken words there would not be any change in our society.
I believe that I must not be frightened of the government and other human-beings.
we are all here, because in some way or another we feel oppressed in a sense that we can't get a reasonable result .as to why ,some of thals sufferes are dying early in life, and some without medications and proper care.
For me to get answers I have to voice my opinions and ask questions and at times say words that others might not like, so be it.
Popularity is not important to me, but a cure and good cares for all thals sufferers, is my utmost concern.
Freedom of speech is important to me,I gave up my extended family , my community and my country ,so that I can enjoy the freedom of democracy.I have given up so much .Please don't ever tell me not to type my words that are important to me.
Oppressive people wants nothing but to shut the loudest. how dare they ?Now and then, we need to rock the boat.
nothing stays the same.criticism is a part of change too,without it we won't know how
Kathy
I will continue to talk .talk.and talk.
nice friend:
Long Live Andy ,
You are great buddy ..
wat a super rocking entry it is ..
you are real representitive of Thals .... Keep it up ... we all are with you .... carry on buddy ..
at least i m with you :thumbsup .... hope you will get alot of info for us .. waiting for you and the story of the conference .. take care andy .. you are more prescious for us than the conference....
best regards
umair
Sharmin:
Andy,
Thanks for standing up for us. What you learn will help thousands. I hope that I have the strength to do the right thing in the face of adversity. I hope that I can do my part in helping you in whatever way that I can. You go through a lot for us - being attacked can break a person - and be very damaging - yet you endure it all of the time for us. I don't know where I would be right now - were it not for you. God bless you in continuing to do your work.
Sharmin
Maako:
Andy, i applaud you for your honesty, intergerety, courage and also for u standing by all of us and by what you beleive in. :hugfriend
I would like to add something more to what you have said.
--- Quote from: Andy on October 05, 2008, 07:40:30 PM ---
And I could go on for days about those who get the worst care and the reason I made India my first conference was to try to emphasize just that. More Indian children die from thal every year than anywhere else on earth. Far more. These people will not be represented at the conference. Yes, there are Indians coming but they can tell you themselves that by far, they are the very lucky ones. I haven't heard of any TIF conference planned for India.
--- End quote ---
Yes, when it was said that this conference was for people in Asia who did not even know what thalassaemia was and why thier children dying, and that they didnt even have access to blood, the first thing i thought was, i wonder how many of those just mentioned would be able to afford such an expensive conference. I would only believe that they (TIF) are holding this for those with less privildges in Asia only when atleast a fair number of them are represented. And like Andy said, India would be a good place to start.
--- Quote from: Andy on October 05, 2008, 07:40:30 PM ---
It is so completely ignorant for your government to have these restrictions when one can turn on ER or Scrubs and be treated to in depth medical knowledge on a regular basis. What is needed is someone who could make this case to them in a persuasive way. Perhaps you should have done like others and asked for my help in providing a persuasive argument while there was time to do so. I do write a good letter and can back up arguments with reason and can even point out inconsistencies in government arguments. By the way, these are SCIENTIFIC programs, not medical. That is why it is called Scientific Programme. Is science also prohibited to the masses?
--- End quote ---
Absolutely true on both accounts.
Sharmin, Thank you for being so patient with all of us through this hightened emotions of frustrations and disappointements. :hugfriend
and Kathy, am so glad u decided not to leave the site. I always feel comforted by your wisdom and constant encouragement you give to all of us. Keep posting.. :hugfriend
Zaini:
Andy,Manal,Puuja and Mariam,
Bon Voyage and stay safe,i am happy that you are all there for us,and i am sure you'll bring home some valueables :) thanks a lot for sacrifying your time and money,especially Andy,who went solely for us,as he has no one with thal in his immediate family.
Eponine,
Thanks a lot for doing what ever you did to organize this event,i am sorry you have to juggle through your transfusions and everything.
Let's be humble and kind to each other :) i know it's hard for people who spent a lot of money and time to accept this situation,but governments can be idiotic sometimes,as we all know.
As Sajid used to say,We are one big happy family. :grouphug
Zaini.
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