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Zaini:
Dear Mariam,
I am sorry i don't know about concum or osata,but you are doing nothing wrong giving him wheat grass,keep giving him wheat grass,it is known to increase energy levels,my daughter is also taking it.
For vitamins ,buy any multivitamin for kids which does not contain any iron and not a very big amount of Vitamin C.He is so small so i don't think he'd be able to swallow tabs,IP6 is the best antioxidant and a natural chelator.May i ask how frequent are his transfusions.
He is so cute and cuddly that i just wanna hug him :bighug give him a big kiss from me. :kissy And don't worry we are here to help you and support you.
Zaini.
Andy Battaglia:
Mariam,
Your doctors are unbelievably clueless. You were at the medical talks and I also introduced you to two of the top thal doctors in the world, and you heard them talk about the importance of supplements. Folic acid, vitamins D & E, B Complex and L-carnitine were all stressed by these doctors. I do not understand how your doctor could have missed all this. All the things you mention are natural products and don't need a doctor's approval to use. Fish oil is made from fish. Wheatgrass is simply a sprouted grain of wheat. FPP is made from papaya and is a pure organically grown product that has shown an incredible ability to enhance the levels of vitamins and minerals in the body and is being studied for its affect in many conditions. These are all natural products and not medicines. They are safe to take and should not require a doctor's approval. Sometimes it's best to just stay quiet and use the things that can help your child. Some doctors think they know everything but when they claim to have more knowledge than the top specialists in the world, it is simply arrogance and will not help your child. If you are able to take your son to see Dr Taher in Lebanon, you will find much more acceptance of the role that supplements can play. For the time being, everything you mentioned is safe and in fact, none of it is even classified as herbal.
Don't let the doctors confuse you. Many doctors resent patient involvement in their own care or care of their children and their arrogance can sometimes be detrimental to patients. At Singapore, we were able to meet doctors with great compassion, who will not allow their egos to rule. If only all doctors could be as caring as these very special people.
poo gill:
hi Mariam
Supplements and herbal stuff can be given with transfusions and chelation.
Zaini - It is Cucurmin(which mariam has referred as cuncom I guess) - it is turmuric(haldi). Antioxidant .
Osata is fermented papaya preparation, www.ori-japan.com or you can mail stephane@fpp-asiapacific.com
Doctors talked very highly of this product.
It is absloutely beneficial for him to be on the supplements as well as his regular treatement.
aysam:
:hugfriend thnx guys you are all the best help eva i love you all and im sure my two year old would write t\he same if he was old enough lol :biggrin
ANDY BAD NEWS the packAGE I SENT WAS SENT BACK TO ME :wah
i am so sorry the customs have opend it and said i am not allowed to semd prescribed tablets or any medication i was in bit of trouble but i never new
i am going to see what other way i can get them to you lol they took $60 and said no return money :mad
at least we know now oh andy i sent you a aemail plz if you can read it and reply to me if u havent recived it let me know oh yes i am not listening to dr here anymore you wanna know i am listening to you guys i trust u guys more :grin :grin :bighug :bighug :bighug
to all and yes i gavemy son kisses and hugsy from all u guys
:heartpink :heartred :grouphug :grouphug :grouphug
aysam:
DATE 14/08/08
DATES 13/10/08 LIVER FUNTION TEST
bilirum total 4 5
bilurum (conjugated) 2 2
aspartate 56 H 80 H
alanine txaminase [bgcolor=#eb0000]58 [/bgcolor] H 134
gamma-gluttxferase [bgcolor=#c40000]14 [/bgcolor] 16
alkline phosphatase [bgcolor=#ff0000]155
[/bgcolor] 165[/left]
[bgcolor=#0000ff]YOU CAN SEE DATES ANDY IN TWO MONTHS BIG DIFFRENCE
I HAVE WROTEN DATES AND THE OTHER SET OF NUBERS ARE IN LINE WITHE Test
DATE SHOWN ON TOP AND THEY TELL ME NPO BIG DIFFRENCE MMM? ALANINE TXAMINASE BIG DIFFRENCE BIG andy me dear you are my life line as this
time as they are being not honest or i am just to panicy
they tell me they are a little high mmmmmmmmmmmmm i dont see this
[/bgcolor] :banghead
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