Discussion Forums > Thalassemia Major

Some good news!!!

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Zaini:
Andy,

She is already taking desferal for 11 hours,her ferritin will be tested today ,i think then i'll determine what can we change in her dose,i hope it's lower then 1000,so may be we'll be able to start Asunra and get rid of desferal,last time her ferritin was 1232 ng/dl.

Zaini.

Canadian_Family:
Zaini,

Please do post the results of her ferritin, Andy is right about the L1 dosage and your daughter is on combination therapy, I only concern the frequency of blood transfusion. Three weeks is not what I expect for a 6-7 year old. I don't know if its the quantity or quality of the blood but its frequent. Our hospital, I hardly see a child on a three week frequency, I think there are only few, if any, that are on three week frequency. The average is four weeks.

Good luck with the results.

Zaini:
Hi C.F,

Thanks for the concern,i am anxiously waiting for her ferritin results,i hope and wish it's below 1000 so that we can stop desferal and start Asunra.Frequency of her transfusions has worried me also,but i think carao is helping her a bit,this time her pre transfusion hb is 9.9 after 4 weeks,while before starting carao her hb was hovering between 9.4 and 9.6 with three weeks intervals,i don't wanna jump the gun and i don't wanna jinx it ,but i think carao is working for her,may be another transfusion or two will help us to be sure.

Zaini.

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