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Sajid Is No Longer With Us
sydneygirl:
i cant believe this terrible news,my heart and sympthany go out to his family in this most
difficult time.
nice friend:
Zaini Sis :
sure , but i think that we also have to make some rules and regulations as well .. please check i have sent my no to you in a PM .. please check that .. i will update something realy soon about this idea ... Zaini Sis ,its truly your own idea .. but ,i had a similar idea before last friday that was , to ask andy to do send the all 1200 members their user name and password so if they have fogotten their username or pasword they could become online again .. and to re-union of members of this site ... and to make sure that they r interested to come back or not ... and where they are and how they are doing ???... to know their health and treatment conditions ... its a good idea sis that you provided .. but we have to make some rules to use this in its true and proper means .. i hope you will got my point in exact and positive meanings ...
@ kathy & smurffette
i hav't refuse any kind of help .. you can find my e-maill adress in my profile and add me aas well ... i m not doing it by myself to avoid the miss-understanding and i dont want to pass the feel of disturbance to anyone and trying to make sure that no one feel about me that i m sticky or i m tracing you people , soo thats why i left it on you to decide to add or not .... plz if anything in this message you feel isn't good then please ignore that as i m a little weak in english as you all know that ..... but i m not feeling bad of my bad english bcoze sajid mentioned several time tha " dont feel bad for your english , after all its not your native language , soo feel free to post , ask and speak english here on forum "
Take care
umair
Zaini:
Thanks Sharmin and Kathy,
For understanding,i believe we all are going through the same situation,grief is overwhelming,i can't stop thinking about him,he was trying very hard to get his ferritin levels low,but unfortunately couldn't take ferriprox due to his WBC levels,i think if he could have taken ferriprox,situation might have been different.As we saw in umair's case how combination therapy helped him.
What we have to understand is that we have lost our dearest friend to iron overload,i know this overload was because of thalassemia,but we have members elder then Sajid on this forum,and in Sajid's case we can't even say he wasn't being compliant,Umair told me that he was doing desferal 6 nights a week.
He was a very strong person and held his self respect very high,never ready to accept help,when i sent him desferal,he never gave me his home address because he didn't want me to dend him desferal although he was short of desferal those days,i sent the package with his name on it to his thal centre and then just informed him.
Unfortunately,finances are a big problem in our country,managing a thal child can be very expensive,if you are managing him/her in the real sense,what with good treatment centres to ensure that you are getting properly screened blood,getting proper medicine with exact doses for chelation,along with the supplements that can help a thal child.
I belong to the so called upper middle class family,but i have help in managing my daughter's supplements atleast,from kind friends i got to know through this site,and my father,who helped me in getting wheat grass and carao,IP6 was provided by another kind friend.
How those parents must feel who have no means to get there kids even chelating drugs?I am thinking about tracking such patients and try to get help for them.It would be a difficult task considering i have two kids ,am a full time mom and have all doemstic responsibilities,but i think i can take my first step then Allah will definitely help me in my cause.
Zaini.
olivia mary:
Christine just called me to tell me the sad news... :wah
I want to say something but no words are coming to mind.....I am in shock ....my heart is broken....Sajid I do believe you are in the best place now healed and whole....I still cannot help but to feel that you have been robbed....I also feel that you had a purpose on this earth look at all of the lives you have touched you are a wonderful person....I will miss you....all my love Kathleen
marziya:
Ina lila hai wa ina ilay hai rajeeoon
Its really sad to hear about Sajid .Very difficult to believe it.
I pray for his soul to rest in peace....Ameen.
Marziya
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