Discussion Forums > General Chatter
IF I HAD ONLY HAD ONE WISH
Sharmin:
you can email Cooley's Anemia Foundation (CAF) to receive the newletter:
info@cooleysanemia.org
This is the letter Bostonian refers to in an earlier post on this thread
--- Quote ---We received the CAF newsletter yesterday. There it talked about Gene therapy trials starting in US very soon. The newsletter also talked about the gene therapy trail going on in Paris. I forgot the name of the Doctor but the company associated with the trial is GENETIX Pharmaceuticals from cambridge, MA. The teenager who participated is doing well and continue to make some Hgb after the therapy. It did not mention if he is free from transfusion but it did mention that they already have another patient identified for theie gene therapy trial. So, may be we don't have to wait next 30 years for gene therapy to be available for our children
--- End quote ---
this is the latest update available on the trials.
maryo0m:
THANX ALOT REALLY :hugfriend
Sharmin:
Maryoom,
You are very welcome :hugfriend
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