Discussion Forums > General Chatter
Just wondering how Umair is doing and if anyone has heard from him
Zaini:
Hello Everyone,
Me and Tariq we both kept sending messages on Umair's cell,then we called but he wasn't answering,then Tariq searched his home phone number in directory and i called there.His father received,he said Umair is bit better,swelling is bit better too,not totally subsided i think,he mentioned a medicine that doctor has doubled the dose,i wasn't able to understand the name.
I told his father that IV desferal will help him and that an ECHO should be done immediately,he said we'll leave for Lahore to see Dr Javeria Mannan tomorrow,i told him to tell her that.
Now lets see what happens,i hope Umair will post here soon.
Zaini.
Manal:
Thank you so much Zaini for the update
manal
Dori:
--- Quote from: Sharmin on March 07, 2009, 07:54:35 PM ---Panos,
L-carnitine will help you in a few ways. It will protect your body from the oxidative stress of iron. L-carnitine is also a NO inducer. NO helps our blood vessels adapt to changing blood volume by making the blood vessels more elastic so that they can enlarge or shrink as required. In thalassemia for various reasons patients often have lower levels of NO and the blood vessels become more rigid and less able to adapt to changes in blood volume and this leads to pulmonary hypertension. L-carnitine helps this situation by inducing NO. Watermelon is also said to be an NO inducer. I definitely think that all thals should be taking L-carnitine, and this is the recommendation in Oakland as well.
Sharmin
What's a NO inducer?
--- End quote ---
Dori:
--- Quote from: nice friend on March 06, 2009, 09:47:55 PM ---Hi buddies,
i m heere to share another bad news ,... here it is ..
i m hearing back to back bad news about my health ,after Malaria, i m having swelling on my feet , today i went to visit my Local doctor (he's my docotr since my childhood) for check-up , he told me that swellng on my feet is bcoze of heart function . i dont wat realy matter is but he prescripted a tablet and told me that take pottassium rich fruits ( for example Banana etc...etc...) . i m not worried but feeling realy sad bcoze of these back to back set backs . hope these all things will dis-apear soon ....
Umair
--- End quote ---
I am so sorry to hear that. I wished I talked to you on msn. This is the last thing I would post here today. I really must back the judgement of Court from the European Court of Justice now. Tomorrow I must held an presentation in English..brrr! :faint2
nice friend:
Awe buddies ,
situation isn't that much critical , almost everything is under controle , it was just another episode of swelling , it happened several times in past as well ... i dont know the if it could becoze of urinary dysfunction , bcoze in my last 2 USG reports, radiologist reported these statement :
1) last one report's :
Urinary bladder is full . No stone, wall thickening or mass seen .
2) 2nd last report :
Urinary Bladder wal is thick and trabeculated however no stone or mass is seen within urinary bladder .
Note : before last one USG i wasn't feeling to go to washroom and before finalizing the 2nd last USG results radiologist told me to go to washrrom and come back again , then he finalized the report. kidneys are also fine .
i have a heart report that test took in sep-oct 2006 ( when first time i went to lahore and i was wheelchair and having high levels of BSL )
Conclusion : Normal Echo Study (it is written in that report)... in details it left and right IVs and ll other things was normal , its prety old report na .. i would like to ahave a fresh one. ...
@ Manal :
Hi Sis, i will definitely talk about L-Carnitine again to my doctor , i hope she will agrree this time , its sound's a relay good thing . soo i will definitely discuss abt it to my doctor . Thanx for searching and providing such informative studies papers ..
@ Andy
Hi buddy ,i m on comppliant with agressives chelation plan , i m on 6-8 days of chelation in gap of 10-12 days, between the 2 Transfusions . its pretty much agressive plan i think . as for IV desferal, i m planing for that as well . after ending this day of IM desferal tommorow i will start IV instead of IM ..
--- Quote ---Without aggressive chelation, you will end up in big trouble. You are beginning to exhibit the signs of congestive heart failure and this has to be reversed
--- End quote ---
yeah , i m also doing my best to take controle of it ...
--- Quote ---Umair, are your doctors willing to listen and learn? If they are, then they will find a way to get you on IV desferal to clean out the iron.
--- End quote ---
i will talk to her about it , and i hope that she would like to avail this oppurtunity to lean and she would also like start Iv desferal to me ( she never restricted IV desferal for me )...
@ Sharmin
--- Quote ---Are your doctors willing to speak with the Docs in Oakland? I am sure that they can get a telephone consultation.
--- End quote ---
Hi Sis, thanx for the concerns and sugestion, its another good option , i will talk to my doctor about this option as well . let's see wat happened . doing my best to washout all the extra iron :thumbsup i m okiey ...
--- Quote ---Umair, I hope that the swelling has subsided. How are you feeling now?
--- End quote ---
i m doing fine , and swelling is decreased as well ....
@ Jade
Hi Jade, thanx for the concerns, compliments and good wishes , i dont think that my ferritin is rising or risen up , i dont use to collect desferals from thal center, i always use my own desferal so supply isn't the probleme, even on TX day i use my own, bcoze i m a little bit cautious about storage and handling issue of desferal, soo its better to have ur own than having the doubt on the efficancy of desferal :) .
--- Quote ---I believe you should go for the tests (heart and kidney) to determine exactly what it is and then take the appropriate action
--- End quote ---
as i mentioned above my last USG reports , according to those reports my both kidnies (Left & right), Gall Blader and pancreas are normal . that USG took on 13-02-09 .... lets see wat happened . i agree to you Jade ,i have to go for heart and kidney test to find out the wat is going on .... thanx for the advise , every drop of advise is helping to keep this river flowing ... :thankyou2
@ Zaini
Hi Sis , i m also planing to take desferal IV at home , and as for thal center's doc , i think its better to consult one doc instead of 2 . it can create illusions between the two different treatments . soo its better to consult to one doc who know your history as well ... as for IV desferal i would like start that tommorow . my papa want to take me to lahore on this friday but i want to wait a little bit bcoze it near to complete the course of a medicine that she advised me for stomach aches , soo i want to finish the course and then test and then want to go to lahore , all this will take 7 more days , i want to visit my doc's clinic on 20th march .... till then i will stress on IV desferals . here are three thal centers in Faisalabad, which like i want a huge one thal center instead of three small thal centers . coze i think that it will be more efficiant aand effective than three smalll and limited capable thal centers (it was an example).... situatioon isn't too bad here , they are fully equiped with basic needs for a thal center .. but patients are little careless here ,, :grin but i m not :grin .... i m in safe hands ... :thumbsup ...
@Baal
Hi Baal , Thanx buddy , surely i will do Iv desferal as much i can ... thanx alot buddy for concerns ..
@ Ayesha
--- Quote ---They gave him LAXIS, through urine all the water came out
--- End quote ---
Hi Sis , for this purpose my local doc doubled the dose of a tablet i m taking on Aldectone , ..i will definitely go for the test you told .. ... thanx for sugestion :thankyou2
@ Zaini
Hi Sis , i think you're talking abt Aldectone that my doctor has doubled the dose , i m fine now , and yeah i will definitely go for ECHO , my papa told me abt that wat you mentioned , . actuly my cell always remain's on silent , bcoze i dont like noises , soo i keep it on silent always . sorry for the disturbance you gone through bcoze of my this habbit . but i use to check my messages a few time a day only .. sorry again for the disturbance ...
okey buddies take care
Best Regards
Umair
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