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Just wondering how Umair is doing and if anyone has heard from him

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nice friend:

--- Quote ---I wished I talked to you on msn.
--- End quote ---
i hope too Dore ,

Take Care
Umair

Sharmin:
Umair, I am glad that your health is improving and that you are taking precautions and doing all of the appropriate tests.  I am very very glad that you are going to be doing IV desferal. 

Sharmin

Zaini:
That's nothing special i have done Umair,we just like you to be here :) .We all just get worried when we don't get any response from you,it was nice talking to you :) .

Zaini.

Andy Battaglia:
The med will help reduce the fluid but does nothing to counter the reason the fluid is there in the first place. The weak heart is the reason and iron is the reason the heart is weak. An echo test has some value for thals but it cannot diagnose iron overload, and this is why the T2* has become the test of choice for measuring iron in the heart. I can tell you right now that Umair would have a very low T2* score. However, Umair has been on the right track and what we are seeing is the effects of having allowed his ferritin to go through the roof in the past. Unfortunately, the heart is the slowest to release iron, so Umair is now at this point. He has made great progress in lowering ferritin but now he must also get the iron out of his heart. He can continue to do what he has and hope he survives until his the iron in his heart is slowly removed. Nur has been doing this by taking desferal 7 days a week. Her T2* score has risen from below 10 to close to 14 in her latest results. This is good progress, but as I told her, she is still in some danger and has to continue her hard work. However, if it was possible for her, and currently it is not because of her job, it would be much more effective if she could have IV desferal administered for 7-14 days straight. This is the therapy that would have the most dramatic and quick effect and hopefully, Umair will be able to take IV desferal for at least a few days straight. Masuma went through this and was even worse off, even though she had chelation at her disposal in the easy to use form of Exjade. She slacked and almost paid for it with her life, as she had to be hospitalized in the ICU because her heart had gotten so bad. Masuma also designed her own combination chelation using desferal and Exjade and her ferritin is now around 1000. Umair can do the same. I would also highly recommend that Umair take IP6 twice daily, as it does offer some protection against iron oxidation.

Umair, I know that with some work, you can turn this around, but IV desferal is where you need to start. You need this dramatic effect to get your iron down low enough to where you are in no immediate danger (and with symptoms of congestive heart failure, you have to realize that there is some danger). Once you get some of this heart iron removed, your daily chelation can do a much better job at keeping you happy and healthy. We're all here behind you and I know you realize that with our support, you can do this.

For myself, I am very happy to see the level of support offered during this time and I want everyone to realize how much easier it is for the patients when they know they have this support. I have seen what support has meant to Nur and I see daily what it means to so many people. We are truly embracing the spirit that Lisa meant this group to have and in my opinion, this is what really makes us different from so much of what you find online.

Andy Battaglia:
I don't see a reply to this but it may have been answered already, but an NO inducer is anything that helps to increase nitric oxide levels in the body.

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