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Just wondering how Umair is doing and if anyone has heard from him
Sharmin:
Umair,
How long had it been since your last transfusion? It would be nice to see you hg a little higher before transfusions.
I am glad that your bilirubin is down and that you are chelating so well.
I hope that your stomach is feeling better.
Sharmin
nice friend:
Hi Sharmin ,
thanx for the encouragement , i m feeling good after taking medicine for stomach ..
it is 14 days gap between last and and 2nd last Tx ...
here is the link of my latest lft and cbc reports in which you can see and compare the bilirubin ,
http://www.thalassemiapatientsandfriends.com/index.php?topic=1870.msg20173#new
Umair
Sharmin:
Umair,
Your hg should not be dropping that much in such a short period of time. You should be transfused at a hg of 9.5 or above, 14 - 16cc/kg every 4 weeks. If your requirement is a little more than maybe every 3 weeks, but your pretx hg should be at least in the 90s. You must make sure that your blood is being properly match and you must get a coombs test done - something is causing too much hemolysis. With this rate of transfusion the chelation has too much incoming iron that it does not get a chance to reduce iron already stored in the body.
This time, you should request to do your transfusion in a week (or whenever you feel that your hg will be in the 95 range) and then be transfused 14 - 16 cc/kg. If it does not last you at least three weeks you should investigate why.
Sharmin
nice friend:
Hi Sis,
i will definately plan a Tx within a week .. after that i will ask my doctor to investigate the reason thatwhy the gap is too short .. and i will ask my thal center's doc as well wat is the volume of the blood they gave me .. good thing is they r doing a good job for me , Lab incharge always try to give me fresh blood and i never saw that my blood is more than 3-4 days old , .. i will try my best to find out the reason ... thanx for the suggestion sis . i realy need that .. i wanted to kow that wat is the needed volume for me .
Umair
Sharmin:
A good volume for you is (14 - 16 cc/kg) - 560 cc to 640 cc on the lower end. If you are needing more blood (20cc/kg) then the volume for you would be 800cc.
I calculated these values based on your weight of 40kg.
Sharmin
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