Discussion Forums > General Chatter
Just wondering how Umair is doing and if anyone has heard from him
nice friend:
Hi Sharmin Sis,
Thanx for your Encouragement , but its not gona end yet after getting down Ferritin below 1000 ,. i got to know my doc's plan and that is to start Hep-C treatment bcoze i cant be a candidate for Asunra (AKA Exjade) untill my liver shows improvements , i m trying to recall but not 100% sure wat was my questio it was
Can i start Asunra if my LFTs comes to normal ranges only wiith medicines (without Hep-C treatment) ??, or it was , Can i start Asunra yet ??, she replied that my ALT is high, so "No" , exactly wat i want to say is after getting S.Fe below 1000 she will start interferon therapy bcoze she said i have both viruses (Hep-B & C) soo i think in her point of view there's only 1 choice in treatment book for me ... she said to contineu desferal as long i can bcoze it is the only chelating drug that i can use to take during Peg-Interferon Therapy , and during therapy , bcoze of decrease of Hb again and again i wil have to take Tx very frequantly, soo definitely iron will increase as well ... and that is more dis-hearting , it took almost 1 year to get on this stage and i m seeing the chances of getting back to iron overload in future .. but, i dont have any other choice and as i have both viruses it couldn't be controled with medicine , as i complete Lamuvidine's course of 3 months to controle Hep-B viruses its better than it was before starting that treatment but its not completely sweept out ..... sooo i dont know wat i m gone go through in soon future .... i started chelation to be fine and healthy to join my Father at bussiness ( to get a reason to come out to home as my father said me to join for a few 1-2 hours a day to refresh my mind, it is the oly activity option that i have on daily basis to go out of home for time pass ) but it has been 15 months to that i m still in progress to join :grin ... and now 6 months more to wait for ..... anyways , its the part of life ... soo , leave it ..
Best Regards for all you people l.
Take Care
Umair
Zaini:
Zaini.
SF:
Bravo, Umair! You've done great in the last few days with DFO!
Today, I'm trying a little less than 2.5g mixed in 20ml over 20hrs SubQ. Let's see if additional dilution and longer infusion time helps with the irritation around the site...
nice friend:
@ Zaini ;
Thank you , for the encouragement , its mean alot for me , Thanx alot :) ....
@ SF ,
Thanx GOD its only bravo not Johny BRavo ahhahaha .... Thank you for encouragment , yes you can also do it , 2.5 is good dose , my doc prescripted me 2g in my last visit i told her that i m on 2g dose since last febraury and never got any reaction , she smiled and replied but its the fine dose for your according to your weight but :grin yeah today i m gona try 2.5g ahhahaha ...
yeah, longerinfusion time and additional water will definitely help you to get ride ove irritation and cyst like lumps , as once i asked to my doc that can i take 3 vial in 10 or 12ml water? , she replied " No it will make solution a little thicker and thick solution will take time to penitrate and till then that will remain at site of infusion like cyst , and it could be irritating and painy experience for you ... BEST OF LUCK for chelation and new changes that you r gonna try in your chelatio plan ...
===================
Best Regards
Take Care
Umair
nice friend:
Hi buddies ,
hurrrraayeee , yep another wound , tis time i was openeing a syrup's seal and that was made of tin like steeled seal , that cutted my thumb's upper area very deeply and bottom are slightly ... upper area was as deep as i tried to clean that with spirit and tried alot but cant clean the cut tha is very deep , yup i cant use my thumb anymore and its my right hand , just thinking how i will take my meals ( spice will hurt it more ) eyyyyyyyyyy , very frustrating , i m consistantly getting hurts wounds and etc etc .... :banghead :frustrated dont know wat to do to avoid getting hurted ...
Best Regards
Take Care
Umair
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