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Just wondering how Umair is doing and if anyone has heard from him

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Zaini:
Good attitude bro  :thumbs Positive attitude is the key to healthy and happy life.

Zaini.

Sharmin:
Umair,

Thanks for sharing this with us :)  I think good attitude is something that all thals need to get in touch with - and us parents too!


nice friend:
Your Welcome Zaini & Sharmin .... thanx for encouraging the way i think :grin :idea

Best Regards
Umair

Dori:
I know how we can call this feeling-->Frutrating! That's the word I was looking for. So far as I know has nothing been publiced about pyruavte kinase deficiency in 2 or 3 years. The king doctor of my anemia died on 4th October 2008. I really was in shock when I found that out. I always planned to meet him some day, I think he was located in Oakland as well, although the last years he spend in Tennessee. You see, I always find a lot of interesting articles on the net, but not specific for me. Don't forget, they only did 1 bmt by a pk def. patient so far. One!! A 5 year old boy from Vietnam, and all the other members of the family had.... thalassemia! Bmt was done in Vietnam as well.

The good thing of today:

My tx went well. I had some pain (I still got), but there was no need then to take a little nap in the car!

Thank you,

Dore
p.s. A Dutch men did obtained his doctorate on thesis on pyruvate kinase deficiency. I was part of this. He had great plans, but they are laying in the fridge at the moment.

nice friend:
Dore ,

--- Quote --- A Dutch men did obtained his doctorate on thesis on pyruvate kinase deficiency. I was part of this. He had great plans, but they are laying in the fridge at the moment
--- End quote ---
&

--- Quote ---The king doctor of my anemia died on 4th October 2008
--- End quote ---
Sorry to hear that ...

--- Quote ---I know how we can call this feeling-->Frutrating! That's the word I was looking for
--- End quote ---
if you're saying this abt me then i want to say here that you're wrong.. i m not frustrated abt it... i m happy to wat i have and to my life ... you can't fight to any of your probeleme if yu are frustrated .. n i m fighting , .. in frustration like feeling you can only give up and cant fight ... i just wanted to clear this up that i m not frustrated ..... and i hope never will be .. i just dont think abt the things not in my controle. ... i m enjoying life and the health as well  giving the health problemes a tough time when those come to take me down ...  my way of thinking is " i have given my best , now  let's see wat's gonna happen next , wat future hold's for me " ... not Frusttrated ... you're wrong at understanding wat i said and at judging the way i deal's with life ...


--- Quote ---The good thing of today:

My tx went well. I had some pain (I still got), but there was no need then to take a little nap in the car!
--- End quote ---
Good to hear that Tx went well , and best of luck for the rest of that stuff ..

Best Regards
Umair

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