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Singapore Conference Report

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Zaini:
It means for 30 hours we are a ship with out our captain  :rotfl Hurry back home captain,we are trying to sail as smoothly as possible  :biggrin.

Zaini.

Sharmin:
Thank you for your tireless efforts Nur, I think our members gained a lot from this conference! 

Aye aye captain Andy, we are eager to have you back on board!! 

Sharmin

Andy Battaglia:
Hi everyone,

I am back and as you may see, I jumped right back into posting. I will make my reports as I have time, but as always, important issues like helping Tariq will always take precedence. I feel the conference had some weaknesses, but to be fair, if you work, you get rewards. I worked very hard at the conference and and was rewarded in many ways, from arranging desferal exchanges (YAY!) to making contacts with many patients, parents and company people. I also got to know some of the doctors better and was quite pleased to see that Dr Piga remembered me from Dubai. I think Dr Wood did also, and I was quite honored to meet Dr Marwaha. The more people I know, the more people I can help.  :biggrin

Andy Battaglia:
One thing that has come up as a result of meeting Bob Ficarra who is past president of TIF and CAF, and on the boards of both, is he asked me to join the Cooley's Anemia Foundation. He pointed out that it would in no way affect the independence I enjoy in this group, but it could also work to advance my efforts.

I would like to ask what our members think about this. I have always had great respect for CAF and Lisa's mom has run the local branch for many years. What do people think? Can it benefit us and are there any pitfalls of which I should be aware. Especially if you have experience in thal associations, what do you think? If I do join, it could lead to me being more involved with the orgs. Is this good or bad? Please be frank and honest if you think there are negatives involved. I do feel that there may be some benefit to joining, especially in terms of enhancing the legitimacy of our group, which should result in us helping even more people.

Zaini:
Andy,

I don't know much about thal associations,but i don't think any thing bad will come out of you joining CAF,it's just that you'll have to devote more and more time,and you are already doing a lot for this group.

If at any stage you feel like it's compromising the independence of this group,you can always leave CAF,can't you?

Zaini.

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