Discussion Forums > Working Towards a Cure
Things you trying
Ayesha:
Hello all...
I was curious to know few things, me and Salman (brother) are on Transfusion + Desferal + Desirox right now... we are not taking any natural supplement like wheat grass or anything.
we use calcium, vitamin - c, vitamin - e tablets and Salman having pain in legs he use Pain Killers too
I need to know that what things you are trying, can I have all the details? like tablets you using, natural supplement you using, anything...
1) what is the name?
2) what is the form?
3) what is the dose?
4) what are the changes you felt after using it?
5) is it available easily? if yes then from where you buying it?
Please let me know...!!!
Sharmin:
Ayesha,
I hope you are both doing well. Are you two taking vitamin D as well?
Best,
Sharmin
Ayesha:
we were told to get Vitamin D injection once every three month, so we are on it!
Sharmin:
I was told in Oakland that they are looking closely at pain in adult thals. I can get more details for you.
I was also told that taking Centrum Silver is a good idea for thals.
Sharmin
nice friend:
Hi Sis ,
first of all i want to say that , please avoid pain killers as much he can . i used pain killer for long periods and result came i got ulcer and sensitive stomach . i can take Fosamax ablets but bcoze of ulcer and stomach i didn't take those pills ... soo please avoid pain killer .. say him to consult to phsyio-therapist and for light exercises .. secondly keep a check on his BMD ( Bone Mass Density ) .. its a test to check the condition of the bone .... if you remember that i mentioned i had the pains in my joints and legs so i took pain killer for long periods , cause of that pain was the weak bones , when doctor treated me for weak bones , it start disapearing .. and now you all know that i m back to play cricket and Soccer with my cousins ... i m saying again , please avoid pain killers ... it could create more complications in his case .... And please dont forget to forward my message of GET WELL SOON to Salman .. and say himm that no need to worry bro , on my behalf,,
please let me know if i missed something to tell about ....
Best Regards
Take care
Umair
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