Discussion Forums > Working Towards a Cure
Why Not????!!!!!
Manal:
Puja, though i know that TIF are supposed to know that we need to be heard and that is not something new to them but i encourge you to do so.
Maryoom, thanks dear for your encourgement , we always have to try our best
manal
Lyanne:
Hi! Manal ! It's brilliant what you did I mean surely mr. Bill Gates would come to realize how important the cause is for us patients and the parents who have an offspring with the disorder , let's just cross our finger that may he respond to it soon.......... :wink
poo gill:
Another thing which we can do is may be draft a mailer and do the votes that it should get into GBD (global Burden of diseases). WE need to work together for this will all world wide communities of thal and societies, get online votes and actually send it to people in charge.
U know what - there are companies who actual pay money as well for patients( you must have got those forwards like my child is sick and this comapny has promised to pay 5 cents per email so please forward it to 10 people or 20 people ). Therefore some amount of money can be generated even while forwarding this mailer, but obviously not as much as how we can get out people like Bill Gates and OPrah.
What do u think this Voting mail will work? Shall we give it a shot.
shy:
Hi Manal,
That is great news, actually i did write to the bill gates foundation also about a month ago and the response i got was that their oganisation is looking that curing other problems in Africa so there was not really any joy there but i have written a letter which i plan to send out to various large businesses and i was even thinking of someone like Jamie Oliver.
If i can get him on board - he maybe able to help in the sense of cooking and diet for thal people and somehow reaching media, television - its worth a try
What do you think?
Shy
Manal:
Puja and Shy
I think that all these ideas are great and we should divide ourselves into groups and START. Each group can work in one of these ideas and ask for help from the others if needed.
For example what i am working on these coming days are finding emails of those important people and sending them. Puja, i like this idea of voting you can start on it and see what you need to put in action and we can work in groups, same thing goes with Shy. So any one who has any good idea to help in global awarness of us and fundraisng, please post what you will need or your plan for achieving this goal and we can arrange it in terms of who can do what, cause we need to start. My idea is that locally we concentrate on awarness of the disease and globally we concentrate on fund raising for a cure. Hope i am making sense.
Thanks Lyanne for your wishes, i pray for this too
manal
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