Discussion Forums > Thalassemia Major
my new baby just diagnosed with thal major pls help
nanuaru:
Hi Avasmom,
I don't know wether to console you or give advice like others . My cutiepie is 16 months old and was diagnosed thl maj when she was three months old since then she is having reg. BT .Iron chelation has not yet started . she is quite bright baby and very naughty only time i remember about her condition is when we go for BT every month . PL do continously give your child folic acid and zinc drops after checking with your physcisian also calcium is very important for her growth .
Don't treat her any diffrently she needs both love as well as discipline for her good growth never discriminate her or favor with any of these two .
Keep POsting
FAther OF cutiepie
Laura:
I totally agree with you nanuaru. It is very very important to be treated as the rest of people. You can't imagine how it is to feel and to be seen like a normal person among the rest and not someone different to whom the rest have to take care of. That helps the patient to grow up psychologically healthy, what is very important to assume the disease and to face the world when he reaches the puberty and then in the adult life.
Kisses,
Laura.
Gabri:
Welcome Avasmom and congratulation for your wonderful, cute baby.
:congrats
Even if it is shocking for you now to know thal your little angel is a thal, and your heart is breaking because of the sorrow, I can assure you that there will be also a lot of day full of joy, gladness and proud because of her. Your baby can grow like each other person, she only has a little handicap consisting in transfusion and later also iron chelation. But she can reach a lot of goals in her life if you will be there to transmit her love, self-assurance and self-reliance.
God bless you
Zaini:
--- Quote from: Gabri on October 31, 2008, 09:36:31 PM ---Welcome Avasmom and congratulation for your wonderful, cute baby.
:congrats
Even if it is shocking for you now to know thal your little angel is a thal, and your heart is breaking because of the sorrow, I can assure you that there will be also a lot of day full of joy, gladness and proud because of her. Your baby can grow like each other person, she only has a little handicap consisting in transfusion and later also iron chelation. But she can reach a lot of goals in her life if you will be there to transmit her love, self-assurance and self-reliance.
God bless you
--- End quote ---
Well said Gabri :clapcheergirl
Zaini.
Andy Battaglia:
I am happy to report that Ava has visited Chicago Children's Hospital and will be a patient of Dr Thompson. CCH is one of the Comprehensive Care centers in the US for treating thalassemia and Ava is in very good hands there.
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