Discussion Forums > Thalassemia Major

my new baby just diagnosed with thal major pls help

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Kathy11:
Goodmorning to everyone,

It made my day reading the good news from Avasmom,

I am happy for our new little member of this site,It sound promising and i'm so glad that she has received good medical care.


There is hope for all, we need to "believe"
I would also like to thank Andy, Sharmin,Manal and Zaini      :hugfriend :hugfriend you are the pillars that keep me strong,
I love you guys.I'm lucky to be understood by you.You are all very special, kind, human-beings
It's another  days, I'm looking forward for good things to enter mine and everyones" life




Always  Kathy

Manal:
To Avasmom

I am so happy that you finally feel safe and know your steps, good luck in everything and please keep posting :hugfriend :goodluck

To Kathy

You are welcome my friend, you are so dear to my heart :bighug and believe me you  have made a lot of difference in many situations in my life more than you can imagine. Thanks

manal

Sharmin:
Avasmom,

We are so glad that you found us!  Andy has changed a lot of lives and the guidance he gives us is truly lifesaving.  Honestly, the center at which you are seen determines your's and your child's quality of life.  We are all happy that you are in good hands! 

Make sure you get that genotype testing - which prevents that only complication that we can foresee.  Everything will be great. :goodluck

Kathy,

Thank you for your kind words and encouragement:)  We all adore you and thank you for all of the support and wisdom you share with us all. 

Take care,

Sharmin

Zaini:
Avasmom,

I can actually feel your relief  :hugfriend i am happy for you and for Ava, i wish i could hug her and tickle her  :rotfl i love small kids laughing and smiling.

Kathy,

Awww.. :wub :wub i am blushing now  :rotfl.
You are so valueable to this forum my dear.

Zaini.

Bostonian_04:
Hello avasmom,

your experience is very similar to ours...as Andy has rightly said the importance of being seen at one of the Thalassemia Comprehensive Care centers....we go to Boston Children's now and our entire outlook towards Thal changed after that. Also these comprehensive centers have good support structures for the entire family.

In addition, can't say enough about support from Andy and this group....Always there to lend support and advise. Thanks to Andy and the entire Thalpal group.

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